Courtneysmum
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Can anyone help with ideas for school lunches please??
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I just wanted to mention that using the ketogenic diet with kids should be approached with extreme caution. Usually, this diet is initiated in the hospital (3 day stay) so that the kids levels can be checked.
You especially want to be super careful if your child is on Topomax or Zonegran or Depakote (Valproic Acid). Topomax and Zonegran tend to cause kidney stones and acidosis, and also the Ketogenic diet does, so the two together can be dangerous (we're doing both Zonegran and Keto diet, but have his C02 levels checked a lot, plus he gets a potassium supplement to keep things buffered).
I can't remember what the problem is with Depakote, but I think its something to do with ammonia.
At any rate, make sure your child is drinking LOTS of water or other fluids. At least 6 cups a day.
That's great, because 2 years ago, I was absolutely clueless about that sort of thing. We had a vague suspicion that he might have Celiac disease or some sort of gluten intolerance, because we'd been living in Asia, eating a rice based diet, and when we came to the U.S., he started eating a lot of bread and other wheat products, and he went from having a seizure every 2 or 3 months to having weekly seizures.
The blood test for Celiac came back negative (even though we gave him lots of wheat products in the few days before having it), but I've since heard that there's lots of false negatives with that test. At any rate, our Epileptologist has told us that even if Jon goes off the Ketogenic diet, we should keep him off foods with gluten.
Another factor that we thought might have played in was processed foods -- when we were in Asia, most of his food was made from scratch, but in the U.S., he was eating more processed foods -- so perhaps the preservatives or whatever was in it was triggering seizures.