seizure warnings / alerts

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werwolf49

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when my seizures might be coming on because i have a young daughter and dont wanna take any chances on hurting her by falling on her also if i could tell they are happening then i could either sit or lay down out of the way. Please help if u can. Thank you so much.

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Perhaps a seizure alert service dog could help you out?
 
Ill check into it. I have medicaid not sure if they will help or not. Thank you

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From what I've read, a seizure alert dog is a pretty rare thing. Seizure response dogs are trained to get help when they recognize a seizure happening (ie. usually after the fact).

In any event, some people have auras (a type of simple partial seizure) that alert them prior to having a bigger seizure. If you don't have auras, I'm not sure there is a reliable warning system that will give you time to react.

There are some medical implant devices (RNS/DBS) that try to detect a seizure as it is starting and short circuit them, but I don't think that is really what you were asking for.
 
I'm with Bernard, there's really not much you can do. During my last generalized seizure it was all or nothing. One minute I was in my apartment just coming home from being out, and the next I was on the floor passed out 1.5 days later and couldn't move. No warning whatsoever.

Seizure dogs of any type are either expensive or require a very in depth knowledge of how to train a dog and a large amount of time and patience. I wouldn't expect insurance to cover your expenses for a service dog. Also, service dogs are serious pets requiring maintenance such as grooming, walking, and feeding. You need to consider seriously whether you can properly care for a service dog that you would presumably take with you every where you go.
 
Yes, I adore my seizure alert dog but I don't have a young child to take care of as well.

One really good thing about having a dog like this is that they do make you stick to your resolutions about getting regular exercise.

Your local Epilepsy Society can give you more info about resources for dogs in your area. Depending on the area, they can be pretty easily available or very rare indeed.

I found mine by accident and did the training myself but I know that is not the typical scenario.
 
I've never had a seizure alert dog, but have experienced many, many seizures when my two now grown kids were still young. They learned quickly what to do/not to do when they saw me going into a "grand mal" seizure. Not a pretty sight for a child to witness. I had to train them to call "911" appropriately and call neighbors and friends when needed. And, yes, it did happen. Unfortunately, it did scare the daylights out of them at the time and my daughter thought her mommy was dying, but it did make them very aware others and of helping when they see someone in need.
 
Like Cint says, children learn fast and they get used to uncommon things, even unpleasant things. My youngest two children are twins and were born 4 years after my eldest special needs son with epilepsy was born. So they do know no better, they always have had him as a brother, they always saw him seize even before they knew what epilepsy is. They learned to recognize seizures at age 3-4, they called for one of their parents, grandma or caregiver as soon as he started to seize at 4-5. At 9 I could leave the room for a short time to go to the toilet or upstairs while one or both my other children watched their brother for a few minutes. Now they're age 12 and try to comfort him, when he has a seizure, try to prevent him from hurting himself and they try to take care of their brother without being asked. It is never a pleasant thing to witness a seizure but my sons siblings are used to it and know what to do.
 
I had epilepsy before I had my 4 children. I was 6 years old when I was diagnosed. I was 21 when I had my first T/C, 3 in a row. The next year I had twin sons.

I never thought whether I might fall on them or not. To me, epilepsy is a way of life. I taught them what to do when I had seizures, call 911. I had a daughter and another son later on. They took care of me and I took care of them.
 
Do you fall when you have seizures or are you worried that you might trip on something, if you walk around, when you have a seizure? Everyone is different. The only time I've fallen during a seizure was when I was in the shower and that was because the floor was wet. A good bit of the time I walk around during a seizure. My husband will try to have me sit down but if I don't then he will follow me all over making sure I don't fall or go outside.

Most of the time I don't know when I'm going to have a seizure. I usually don't even know that I've had one unless someone has seen me have it or if I have a horrible headache, which I get after many seizures.

I don't know how old your children are but do they know the things that you do during a seizure and that you are having one? If they know you are having a seizure then maybe they could try to have you sit or lay down and call for help.
 
I fall everytime i have one. Ues mychild knows what to look for and she knows how to call for help. Her mom is actually the 911 operator for this area so that helps too. Ive never had a seizure where i walk around or anything i just always pass out.

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I had a seizure yesterday on the train.The only reason I know this is because I live on the east line and when I was the west line in territory I had never been before and had to ask help.I told someone I feel asleep one the train.

I don't have aura's my seizures just happen without any type of warning most of the time.
 
Belinda, you had a rough time. Are you injured?

I hope you feel better. :hugs:
 
Ruth,
I didn't get injured, but disoriented I sure got.
My seizures are increasing again but what's new?
 
I know what brought on my seizure it was.
I had waited 1 1/2 hrs in the exam room for the doctor and he never showed up, I wasn't told he was behind. What's one to do when they don't have aura's and I refuse to sit at home waiting for someone to drive me places because I might seize.

ppl tell me to get the stress out of my life how? I don't know anyone who has a stress free life.
 
I agree Belinda and ive been told the same things as you have. I cant take the chance on driving with a little one in the car and i dont have anyone to drive for me except on a few occasions. I wish i had good advice but im sorry i dont just dont feel alone because you're not and if i find an answer ill make sure i tell you also. Ill keep you in my prayers

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Belinda there is no such thing as a "stress free life." There is no such thing.

Do you live close to a bus? Whenever we move, we always pick out a house that's by a bus stop.

Do you have Dial a Ride? It's cheaper than a taxi. You should have it living by Atlanta.
 
Ruth,
I live a 15 minute walk from the train station, and the train /bus get me around because I won't sit home. I get out and live my live.
 
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