Seizure without physical symptom?

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

S

strike

New
Messages
16
Reaction score
0
Points
0
Can someone explain to me what it is like to have seizure without physical symptoms(eg. seizure only in the brain)

What happen to me was I just got the EEG result back and result was normal. I felt heart-broken thinking I can finally get treatment for my brain(I get click noises in brain + mental exhaustion). Right now, I don't know what to do next, because I'm looking for a medication that can control my symptoms in my brain. I have a strong feeling my disease in my brain is caused by a trauma when I took overdose of predisone eye drops to treat my iritis(woke up in the morning with massive headach/dizziness). My MRI was normal too. I don't know why. What can I ask my doctor/neurologist to do? Any suggestion/comment appreciated. Thanks
 
Not to sound rude, but from what I'm understanding from your post is.....you had no physical symptoms of a seizure, no signs of a seizure on the EEG and no mass or sign of trauma on the brain. So therefore, I would think everything is normal, no?
 
I agree with msuder. I could be not understanding your post as im slightly postictal at the moment. just had a bout of several SP in a row. But if everything is clear, and all you have is a clicking and mental exhaustion, have you tried getting an appointmen with an neuro-opthamologist to check your eyes for trauma and the area connecting your optic nerve to your brain?

what about a audiologist to check to see if the clicking is a hearing issue with your nerve.

Mental exhaustion could be from lack of restful sleep. Either due to stress, eating before bed, sleep apnea etc. So have you looked into those?.

Also the clicking noise could come from TMJ issues or a herniated disc in your spine *your skull acts like a megaphone and amplifies the sound the clicking in your spine makes, so you hear it IN your head as opposed to it coming from the source*
 
If it was only a regular 45-minute EEG, maybe ask for a 24-hour or a 72-hour EEG? It took crashing my car for any neurologist to go beyond the 45-minute EEG and finally find some abnormalities. My 45-minute EEG was normal, my 24-hour EEG had some 'possible' abnormalities, but my 72-hour EEG was the one that indicated a seizure disorder. Be pushy. Some seizures are hard to pick up.

I'd also look into these as a possibilities...

Review and Case Study of Sounds Associated with the Lightning Electromagnetic Pulse:
http://journals.ametsoc.org/doi/abs/10.1175/2009MWR2931.1

...The electromagnetic pulses (EMPs) associated with two lightning flashes on 22 July 2008 in central Alabama produced audible clicking sounds...

Association of Tinnitus and Electromagnetic Hypersensitivity: Hints for a Shared Pathophysiology?
http://www.plosone.org/article/info:doi/10.1371/journal.pone.0005026

Are you living close to a cell phone tower? (Google 'Antenna Search'.) Wifi in your area? The article above doesn't give the condition much justification, but a lot of researchers in other countries are validating that this condition (Electromagnetic Hypersensitivity) does exist.

This might apply, too, if EM fields are your underlying problem...

http://www.coping-with-epilepsy.com/forums/f23/seizures-solar-geomagnetic-activity-11768/
 
Last edited:
It was a pain...I had to get a ride in every day for them to download the information and check my 'wires', couldn't shower, but I got through it. I saw it as a better option than being hospitalized until I seizured. I was lucky it picked something up because I don't recall having any events similar to the ones that put me in an ambulance twice.
 
What I mean by seizure without physical symptoms is I get shaking/clicking in the brain, but I don't have any body parts that is shaking. Funny thing is I got normal EEG results. Which is why I question what's it like having seizure with physical body parts moving/shaking. If my EEG result is 100% correct, I really don't know what to do, my life would be horrible without any treatment. I would have to categorize my disease as "rare" or "unknown". Ofcoarse my doctor said he can't help. I just need help in finding treatment.
 
maybe your brain is broke. lol. no jk. i honestly don't know. i've never experienced any shaking or clicking in the brain. even when i had either of my brain tumors. you're probably going to have to get an extended eeg. and believe me, the shaking of the body parts - you don't want it.
 
what about some kind of scan other than mri like pet scan or I even heard of a scan when they inject you with a chemical to see better image of the brain. I'm also thinking of buying lacosamide online to see if it would help. My neurologist appointment is july 23.
 
I'm also thinking of buying lacosamide online to see if it would help. My neurologist appointment is july 23.
Click to expand...

Don't do it. AEDs are powerful meds and shouldn't be taken without a doctor's supervision. trust me. Hang in there until you see the Neurologist.
 
I'd strongly advise against buying meds online. I mean, i was on lacosamide (Vimpat) and had some truly awful side effects, but i also had a doctor and a neurologist to help me out and tell me the correct doses to go onto and to help me when the side effects were becoming dangerous.

The clicking noise could be tinnitus or something in your environment that you've not previously noticed. It could be dizziness in your head, or vertigo which is causing the sensations you're feeling, which could point to an inner ear problem.

It could be any number of things, perhaps you should get these checked out before taking dangerous medication from over the internet.
 
I don't think I have tinnitus or inner ear problem, It's definately from inside the core of my brain that is tightening up/clicking, which causes mental exhaustion/low energy/metabolism. What's worse is when I think of sex/or when I'm aroused, the symptoms gets more intense. I don't date anymore, can't get girlfriend/wife even though it's my dream to have family. I barely have enough mental energy to work. I'm afraid I'd get worse, and can't work any more.

Anyway when I see my neurologist I hope he would do more test for me, but I have a feeling that he wouldn't because my mri and eeg shows normal and my symptoms are strange to him. I'll keep holding on. My suspicion right now is damaged amygdala/hypothalamus, but I don't know why mri/eeg came out normal. Thanks
 
Last edited:
Strike,

Clicking noises in your brain.... have you ever heard a heartbeat through a stethoscope? Does it sound like that? Is it roughly in time to your heartbeat? If so, it could be a form of tinnitus, even if you don't exactly hear it in your ears.

Massive headache....
Use of steroids that made headache much worse....
Dizziness...
Exhaustion....

Have there been changes in your vision?

Have you had a lumbar puncture, and did they measure the opening pressure? If so, what was it? If not, next time you run through the testing gauntlet you may want to have it done. It's not fun, but it would be one more piece of the puzzle.

When's the last time you had your eyes checked, and the doc looked at the nerves & disks in the back of your eye?

I get "buzzing" in my brain, but I think it's due to another neurological condition that I have - IIH (Idiopathic Intracranial Hypertension) not epilepsy. I get the buzzing in my whole body, too. It gets worse when I am late with or miss my medications.

In the meantime, if I were you I'd get a new neurologist, even if just for a second opinion. A second pair of eyes never hurt anything and sometimes it helps.
 
Endless said:
Strike,

Clicking noises in your brain.... have you ever heard a heartbeat through a stethoscope? Does it sound like that? Is it roughly in time to your heartbeat? If so, it could be a form of tinnitus, even if you don't exactly hear it in your ears.

Massive headache....
Use of steroids that made headache much worse....
Dizziness...
Exhaustion....

Have there been changes in your vision?

Have you had a lumbar puncture, and did they measure the opening pressure? If so, what was it? If not, next time you run through the testing gauntlet you may want to have it done. It's not fun, but it would be one more piece of the puzzle.

When's the last time you had your eyes checked, and the doc looked at the nerves & disks in the back of your eye?

I get "buzzing" in my brain, but I think it's due to another neurological condition that I have - IIH (Idiopathic Intracranial Hypertension) not epilepsy. I get the buzzing in my whole body, too. It gets worse when I am late with or miss my medications.

In the meantime, if I were you I'd get a new neurologist, even if just for a second opinion. A second pair of eyes never hurt anything and sometimes it helps.
Click to expand...

Yes it does feel like a heart beat inside the core of my brain. It's also tight with sensation(like an orgasm type of sensation). When I fantasies about sex/watch porn/get aroused by a woman beside me. The symptoms intensify and I would get more mental exhaustion and my face would look even more like a zombie. Pretty tough on my career. When I google tinnutus, I didn't think I have it, cuz my ear feels normal, but you might be right that it could be in the brain. If it is from the brain then it's pretty rare and a sick and silent disease.

Now that I think about the trauma that I had before(overdose of prednisone eyedrops to treat my iritis, resulted in waking up in the morning with massive headache, vomiting and dizziness, doctor treated me with just dizziness pill) Maybe that lead to a rare form of tinnutus and not epilepsy. Thanks for your input .

I do have to see an ENT(Ear Nose Throught) Specialist to diagnose this? Maybe neurologist can do this as well?
 
I'd definitely see your PCP and ask her opinion on who to see. Depending on the possible cause, you could need to see a neurologist or an ENT. If it were me, I'd go for the neurologist first, ENT later, or make appointments with both (if you have insurance).

Different scans have a different purpose. An MRI shows physical structure. A PET scan shows metabolism in the brain (how fast different parts of the brain uptake glucose). Google each of them - there's lots of info out there. PET scans usually are used last, if at all. Insurance can be pretty sticky about covering them. Useful if someone is a candidate for surgery. Otherwise, usually not used.
 
Last edited:
Try getting a SPECT scan of your brain. Don't know if it'll explain the tightening you feel, but it might be something you want to look into. Mine showed reduced blood flow to certain areas of my brain. I also experience a 'tightening' sensation that is constant, only mine is in my lower jaw/lower teeth. It feels like there is a thick rubber band or a super strong magnet located somewhere above my lower jaw, connected to it somehow, constantly and relentlessly pulling my bottom front teeth upwards against my will. It only affects my bottom front teeth...no other teeth are affected. Don't know if it's related to this relentless teeth/jaw tightening I feel or not, but my SPECT scan did show abnormalities. Might be something you want to look into?...though I doubt any doctor will do anything about any abnormalities they find...they did nothing for mine.

I also feel an extreme tension/tightening at the base of my skull (just above my neck) that can last for days (sometimes weeks) prior to a seizure. What's weird is that after I seize, it let's up some? I gotta admit too to that this lower jaw/lower teeth symptom and base-of-skull tension often increases during arousal. Not sure why?
 
Last edited:
I get clicking noises in my left ear before some seizures. And it was monitored. It is really rare. But it happens. It happenned in my later years of my epilepsy. After an infection.
 
You must log in or register to reply here.
Back
Top Bottom