Janus
Veteran
- Messages
- 1,034
- Reaction score
- 21
- Points
- 163
I am visiting family in Maine. 3000 miles from home and 3 hours different. I flew here and that went fine. Stayed one night great. Then I noticed in my med tray that I had taken the evening meds in the morning. So I took the evening dose from extras. Because they're all different. You may know. .. for me lamotrigine in the morning, and the others are only in the morning,etc etc.
So I have this seizure in bed. My caregiver, girlfriend who is Always there. My son came with me, and thank God. He got up and have me the E-meds, diazapam. I have Retractable epilepsy, uncontrolled, usually status. Only stopped by drugs or ice bath. So, I have to be given this gel in mouth to knock me out. So that was a success. But scary. Sometimes mine come in clusters so I pay real low for a few days.
But. My caregiver is by my side 24 hours a day. So I'm scared to be alone. It's beautiful country, nature. Living on a dirt road I am trapped. I do not go on walks alone. My family know. It's new to them. my epilepsy started in my twenties when not in Maine. They know about me and what epilepsy is only by what I tell them but they've never seen a seizure. And now I hang around them all the time. Like follower people around if they're the only one else who is home. This is my first time doing this. ( Being able to say to family, my caregiver is not with me, I can't be alone. While here, my son knows where the E-med is.. that is a form of safety. It's a lot of work because they have their lives and when there is one or two people home, I feel so guilty about feeling like I'm always in the way and my problems are just too much for their comfort. I told them how I feel and they have been so supportive. ( ,"Oh, don't worry honey",) I don't believe it. I feel guilty.
So I have this seizure in bed. My caregiver, girlfriend who is Always there. My son came with me, and thank God. He got up and have me the E-meds, diazapam. I have Retractable epilepsy, uncontrolled, usually status. Only stopped by drugs or ice bath. So, I have to be given this gel in mouth to knock me out. So that was a success. But scary. Sometimes mine come in clusters so I pay real low for a few days.
But. My caregiver is by my side 24 hours a day. So I'm scared to be alone. It's beautiful country, nature. Living on a dirt road I am trapped. I do not go on walks alone. My family know. It's new to them. my epilepsy started in my twenties when not in Maine. They know about me and what epilepsy is only by what I tell them but they've never seen a seizure. And now I hang around them all the time. Like follower people around if they're the only one else who is home. This is my first time doing this. ( Being able to say to family, my caregiver is not with me, I can't be alone. While here, my son knows where the E-med is.. that is a form of safety. It's a lot of work because they have their lives and when there is one or two people home, I feel so guilty about feeling like I'm always in the way and my problems are just too much for their comfort. I told them how I feel and they have been so supportive. ( ,"Oh, don't worry honey",) I don't believe it. I feel guilty.
Enjoy their company AND the surroundings. Like HK says, sit outside, maybe go for a brief accompanied walk, just breath the fresh air.