sensory symtpoms and SPS

[jfittler]

Does anyone know if it is normal (lack of a better word) or common I guess to have sensory symptoms in various parts of the body, like mine started in the right side, then moved to the left for a few days then to bpth arms not legs, then occasionally Ill only have it in jaw, or tounge it is just so random. Mine seem to change everytime I have them, or be the same symptoms but in diffrent combanations in difftent spots of the body???? Anyone else get this, also Ill have autonmous symptoms one time, then the next only sensory, then motor and sensory then sometimes both or all grrr this is so frustrating. And my right eye is blurry ALL the time, or I get like a flashing in the edge of it for minutes to hours. Then I have a hot flush and dont know if it was just a hot flush or another seizure sorry about the rant but Im really frustrated at waiting for a dx and not knowing what is going on, although I guess I do know and just dont want to accept it maybe......

xx Julie

 

[momof3boys]

When I have simple partial seizures, this is what happens to me.....

First off, I get a weird feeling that overcomes me. Kind of like something isnt right. I feel kind of confused, and just get this feeling like something is going to happen. I get a really sad feeling that overcomes me. Then when and if I can alert someone something is going to happen, about that time, my hand and foot on my left side starts to get a tingling feeling in them, like pins and needles are all over them poking them. The feeling then goes up my whole left side of my body. My head turns to my right, and my body stiffens and my right side starts to jerk. Im awake during all of this. As the tingling spreads up my body, it goes into my face area, where it feels like a zillion pins and needles are attaching my face, especially on the roof of my mouth. This whole time, my body is stiffening up, the jerking starts out on my right side, and if its a big seizure, it goes to my left side too. They last between 1-3 minutes. The biggest one I had, I actually blacked out for a small amount of time, and when I came to, the nurse was giving me ativan. That was my biggest one I had. Since being put back on Keppra XR, Ive not had anymore since.

 

[jfittler]

because my big ones happen in my sleep mostly like just then, Im not sure if I blackout or just fall asleep in the middle and thne wake up again, but that one I just had Im pretty sure I blacked out and woke up with my hand all twisted but it released the moment I opened my eyes and then the other crap hot flushes oh a new one feeling like a elephant is on my chest went on, it has sort of stopped now just weirs woozy head and feel like Im going back into it again there getting worse what does that mean. Im so frickin scared.:/ Everyone elses seems to have a pattern but mine chops and changes all the time, is this common???

 

[Bluesbrkr]

I get some weird symptoms as well. I'll get a "swelling" sensation in my chest...almost like a big adrenaline rush. I'll have weird shivers in my legs. I often get a strange buzzing around my hip... I always think my phone is going off, even though it's not even in my pocket (which I, of course, forget). I get numbness in my tongue often (had numbness in my cheeks today... that's a new one.) I also get occasional blurry eyes as well. I think it is pretty common, and another one of those things you just learn to live with. I'd definitely mention it to your neuro as soon as you can. Maybe some med changes or dosage adjustments might help reduce the sensations. Some of mine have gotten better over time and with some changes to meds.

 

[jfittler]

constant sps when trying to sleep ans awake

Lat night I have been having constant sps there alot worse when Im trying to fll asleep and are continous every 5 minutes when Im awake I get a bogger break and lesser symtpoms what is happening to me Im waiting on a diagnosis and am on no meds am I in staus epileptus am I going to die, what do I do?