shivering

[MAB]

Has anyone every experienced intense shivering and the hair on your arms standing up even though it isn't extremely cold as part of a seizure? Sometimes I have this and I not sure if it's related to seizures or something else.

 

[Ruth]

I have experienced some shivering but never thought of it as seizures. I just do not know.

I found two links that you can look up.

The link is: http://www.epilepsy.com/node/976401

 

[Shelley]

Is this post-ictal?

 

[MAB]

thanks, I will take a looks at it.

 

[Ruth]

Is this post-ictal?

Have you had any experiences with shivering, post-ictal, Shelley?

 

[MAB]

Is this post-ictal?

I don't really know. I only have partial seizures and even thought I have been having them for 4 years next month, have have only known seen Oct. that they were seizures.

Usually I just have bouts of weakness on my left side going on now) and then I began to experience phantom odors about 3 years ago. I remember at times shaking vigorously and the hair would stand up on my arms. It wasn't particularly cold and no one else was shivering. I'm thinking it might be another way my seizures manifest (like they are the seizure). I hope I make sense. I have been awake since 2AM and don't feel well.

 

[Ruth]

I think you should ask your neurologist what is going on.

Keep us updated.

 

[MAB]

As some as my husband gets his butt in gear we are supposed to go to the hospital for some blood work and a urine test. I have an emergency appointment with my neuro tomorrow. I had a long partial seizure Saturday and an even longer one today.

 

[Ruth]

I am glad that you are going to see your neurologist. Get the blood work and urine test done today. The doctor will want to know the results.

 

[MAB]

I am glad that you are going to see your neurologist. Get the blood work and urine test done today. The doctor will want to know the results.

that's the plan

 

[MAB]

I can't pee at the doctor's office so I have to stay here until I can go, and take it with me. I have so many issues. LOL

 

[Cint]

Do you also have thyroid issues or any Vitamin b12 or D issues? When my thyroid gets off track, I start shivering sometimes for no reason. And AEDs can also mess with these.

 

[MAB]

Do you also have thyroid issues or any Vitamin b12 or D issues? When my thyroid gets off track, I start shivering sometimes for no reason. And AEDs can also mess with these.

Yes, I have hypothyroid problems. They just adjusted my thyroid meds a couple months ago and I haven't had the levels retested yet.

 

[MAB]

I thought this was going to be a breeze to keep under control, just take all my meds on schedule, try to get enough rest, eat well and exercise and everything would be like it was before I had the stroke.

My biggest issue is admitting I have health problems. For some reason I see my health issues as a personal failure. I don't judge other people like that, only myself.

 

[masterjen]

For some reason I see my health issues as a personal failure. I don't judge other people like that, only myself.

I can relate to feeling like this. I used to think to myself that if I didn't do this, or did do that, then seizures would never have started. This mindset I had was also strengthened because of the attitudes of at least two family members.
I had been working a full-time and a part-time job for close to a year (but loved doing it, despite the long hours and hard work) when seizures started, and for the previous 7 years I was showing mild signs of celiac disease (in hindsight) which also reached a head around the same time. Was diagnosed with FLE, and the rest is history. I try not to think about it, but especially early on I wondered if I hadn't pushed myself with working, then perhaps I would not have reached my seizure threshold that triggered the epilepsy to rear it's head.

 

[MAB]

I can relate to feeling like this. I used to think to myself that if I didn't do this, or did do that, then seizures would never have started. This mindset I had was also strengthened because of the attitudes of at least two family members.
I had been working a full-time and a part-time job for close to a year (but loved doing it, despite the long hours and hard work) when seizures started, and for the previous 7 years I was showing mild signs of celiac disease (in hindsight) which also reached a head around the same time. Was diagnosed with FLE, and the rest is history. I try not to think about it, but especially early on I wondered if I hadn't pushed myself with working, then perhaps I would not have reached my seizure threshold that triggered the epilepsy to rear it's head.

thanks for understanding.

 

[saleen]

When I first started getting aura's... didn't know they were seizures, I used to get the "dejavu / dream like" type of feelings and I would start shivering during and after the de je vu feelings would go away... like for a few minutes. It hasn't happened to me in years though. I don't have thyroid issues so I can't say if it's related... I doubt it though.

 

[Cint]

I thought this was going to be a breeze to keep under control, just take all my meds on schedule, try to get enough rest, eat well and exercise and everything would be like it was before I had the stroke.

My biggest issue is admitting I have health problems. For some reason I see my health issues as a personal failure. I don't judge other people like that, only myself.

I've had E seizures for over 30 years and have tried nearly everything available to control my seizures. Back when mine first started, I, too, thought they were going to be a breeze to control. And they were until I had my 2nd child. That's when E reared it's ugly head again for me. The hormonal thing for me set them off again. And I've had nothing but health problems since, plus my kids have seen a lot, too. I feel I really let my kids down. That is where I feel like such a failure.

 

[MAB]

I've had E seizures for over 30 years and have tried nearly everything available to control my seizures. Back when mine first started, I, too, thought they were going to be a breeze to control. And they were until I had my 2nd child. That's when E reared it's ugly head again for me. The hormonal thing for me set them off again. And I've had nothing but health problems since, plus my kids have seen a lot, too. I feel I really let my kids down. That is where I feel like such a failure.

Cint, it's not your fault. You shouldn't feel like you failed your kids. I doubt they feel that way. I do understand what you are saying though. I want to be able to help my son and disabled daughter in law with my grandson. He has autism and I feel so guilty when I can't help them but that is probably my biggest stress. We have him several days a week, almost as soon as I get home from work he is here and he can't understand that I need to eat before we play.

2 weeks ago my husband and I went away for 2 days to a very nice private cabin in the woods. I was able to sleep both nights with no sleeping meds. That never happens when I'm home.

 

[Ruth]

The problem is that you cannot spend as much time as you need to with your children. I was in the hospital a lot when my first 3 children were growing up. They tell me that I failed them.

My fourth son, I was not in the hospital as much. I was able to spend a lot of time with him. He is still living with us and we are getting along fine.

I understand how Cint feels.