should i go to hospital?

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Maidenminx

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Started the day with waking dreams. They ended and the jerks began, which have been slowly increasing in severity but not frequency. Moments of paralysis. Vague most of the day. Thinking brings on jerks.

Nothing has gone for very long but I've been in and out of seizure activity all day.

What to do?
 
Maidenminx:

I'm not familiar with your situation, other than this post, so I don't know what's normal for you, but, yes, this sounds serious to me.
 
I would call your doctor or Nurologist and tell them what's going on. If they tell you to come in or go to the hospital do it I you feel comfortable or it's not right then don't go, it's really up to u
If you feel like you should go to the ER I WOULD GO, but if you don't go it could be something serious or something small. I rather be safer then sorry If it was me.
Keep us posted if you go good luck :D
 
I'm here. I feel like crap. So over this.

Waiting to see the doctor. There's a baby screaming next to me. I have no problem with the child but I could slap his mother.
 
I hope you get on alright :) keep us informed thinking of you .... Ha ha about the comment on the baby's mum lmao ... Hope you get some answers or some meds to stop it
 
Well I'm home again. Once again it was a dose of valium, a nap and sent home. This time though they gave the valium intravenously and, man, does that sting. I'm all bruised where they injected it. 3 days till my sleep deprived eeg and a week till my next neuro appt. Hopefully I can last that long without another hospital visit. Half the nurses recognised me from last time, which wad only 8 days ago. I'm not sure how much more of this I can take. I know it's a day by day thing but it's really feeling like 1 step forward, 2 back at the moment.
 
There is a Buddhist saying "Life is 10,000 joys and 10,000 sorrows"
It helps when I'm walking through the dark times - I hold on tight to the last joy I remember and try to ignore the sorrows raging around me.

It helps get me through the moments.

For what it's worth - I also try not to have expectations (good or bad). Helps me to better deal with what is really happening at this moment

Take care of yourself!
 
So was the doc and nurse rude to you? Did they give you a reason on why or what could be cause in all this?
 
Hospital again today. This is getting ridiculous.

I had a 5 minute full paralysis seizure. Once I realised it had been 5 mins I managed very slowly to make enough noise to get my families attention. Eventually I managed to express my desire for an ambulance. By the time the ambos got to me I regained the use of my upper body and voice. I was able to make requests and organise a few things. Ambos arrived I slowly go my legs back enough to walk down stairs. I was also jerking violently.
I was taken to the local hospital again. Once I got there the jerks decrease but the paralysis came back.
More bloods taken, more valium given. Extra useless tests done. After a couple of hours of sleep I was woken to be told I looked better and I was ok to go if I wanted. I took as we need your bed and left with a script for valium and told to take 2 day. I was also told it"definitely looks like seizure activity". Well, duh!
I'll only be taking the valium as necessary. I don't need to be come dependent on it.

Now I'm worried about my arm that is bruising and swelling from yesterdays intravenous doseof valium. If I have to goop to the hospital for that tomorrow, I think I might snap.
 
Status Epilepticus is..

A patient who has continuous seizures or does not recover between recurrent seizures that are "so frequently repeated or so prolonged as to create a fixed and lasting condition" is considered to have status epilepticus (SE). Clinical and experimental data indicate that seizure activity for 30 minutes is a reasonable criterion for use of the term, at least for recurrent seizures, because brain damage is likely to occur at this point. Aggressive treatment should start much sooner, however.
Click to expand...

http://professionals.epilepsy.com/page/seizclass_epilepticus.html

If anyone has a seizure that lasts over 5 minutes or they aren't recovering from the seizure before they have their next one, call 911 (U.S.) right away.

http://www.epilepsy.com/epilepsy/firstaid


Seizing all day is cause to go to the ER. They usually give you something a little longer acting than valium when you leave the hospital. Usually a prescription for an anti seizure medication just to tide you over until you see your neurologist.
http://professionals.epilepsy.com/page/managing_diaz.html
 
Maidenminx said:
Hospital again today. This is getting ridiculous.

I had a 5 minute full paralysis seizure. Once I realised it had been 5 mins I managed very slowly to make enough noise to get my families attention. Eventually I managed to express my desire for an ambulance. By the time the ambos got to me I regained the use of my upper body and voice. I was able to make requests and organise a few things. Ambos arrived I slowly go my legs back enough to walk down stairs. I was also jerking violently.
I was taken to the local hospital again. Once I got there the jerks decrease but the paralysis came back.
More bloods taken, more valium given. Extra useless tests done. After a couple of hours of sleep I was woken to be told I looked better and I was ok to go if I wanted. I took as we need your bed and left with a script for valium and told to take 2 day. I was also told it"definitely looks like seizure activity". Well, duh!
I'll only be taking the valium as necessary. I don't need to be come dependent on it.

Now I'm worried about my arm that is bruising and swelling from yesterdays intravenous doseof valium. If I have to goop to the hospital for that tomorrow, I think I might snap.
Click to expand...

This is awful. Im so sorry for you. I think you should make a quick one page list of dates and times you've been to the hospital lately. Make is simple to read for the staff. Include the date, the event at home (type and length), ambulance or not, meds at hospital, etc. Next time you go GIVE IT TO THEM AND ASK FOR AN EXPEDITED REFERRAL TO YOUR NEUROLOGIST. maybe if they realize you're not well, they might help more than just band aid the situation. Also send a copy of that list to your doctor or drop by with it and ask the secretary to add it to your file.

Im sorry. It sounds terrible to go through all of this. It seems to me you deserve an emergency visit with your neurologist. Good luck and I'm proud of you for hanging in there through all of this. It gives us all strength to carry on.
 
Endless, thank you for those informative and scary links. I think I'll be ringing the neuro today and seeing of he considers Friday too far away for an appointment (it's Monday morning here in Aus.) I have my sleep deprived eeg tomorrow so, even though I am completely exhausted I don't get to sleep for any more than 3 hours until tomorrow afternoon.

Man, I'm sounding negative... Or am I just relaying the facts.

Julie, thank you for the list idea. That is especially good for when I can barely speak.

On the plus side, my arm hadn't swollen or bruised any further. Also our son gets to miss the first day of term because we overslept this morning. Considering I barely saw him all weekend, this is a good thing to me.
 
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