Should I sleep or not

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

horsehead

horsehead

New
Messages
488
Reaction score
0
Points
0
So my husband thinks I sleep to much.
When I go to bed normally around 9 i have to rock my body for hours in order to fall asleep. if I go to bed later I still have to do this. My leg jerk all over the place and my body has a crawling feeling, this is why i rock. If I dont I'm in pain. Once I do finally fall asleep i have to get up 3 or 4 time to go to the bathroom. My husband is wanting me to get up at 6:30.Do to the really bad sleep i get i have been taking naps. My husband thinks if i take naps I wont be able to sleep at night. wether I take a nap or not i still dont sleep well.So what do you guy think? Oh and seizures or whatever they are also wake me up. Anyone else have this problem . What do you do?
 
Last edited:
I do what my body tells me. If I wake up numerous times a night, then of course I will have trouble sleeping and will be tired the next day and will probably want a nap. And there have been times when I've had a nocturnal seizure that woke me, so I want to sleep, sleep, sleep.....

Does your hubby get up with you the 3 or 4 times a night and then get up @ 6:30?
 
yep I do have that thanks for the idea on helping. will a multi vitamin work?
 
Yes a multivitamin should be okay. (And getting as much as possible from food sources is good too).
 
Also, have you had your thyroid and your A1c levels (for diabetes) checked? These could cause constant fatigue and diabetes can make one needing to go to the restroom 3-4 times in the night. Been there, done that.

from http://en.wikipedia.org/wiki/Restless_legs_syndrome#Underlying_disorders
Other associated conditions include varicose vein or venous reflux, folate deficiency, magnesium deficiency, fibromyalgia, sleep apnea, uremia, diabetes, thyroid disease, peripheral neuropathy, Parkinson's disease and certain auto-immune disorders such as Sjögren's syndrome, celiac disease, and rheumatoid arthritis.
Click to expand...
 
I know this sounds silly, but I was having trouble at night with my legs and hips at night. My bestie told me to put a bar of old fashioned Ivory soap at the foot of my bed in between the mattress pad and the fitted sheet. It works amazing. No leg or hip pain or having to rock them to sleep. Please try, its an inexpensive, non-medical solution. I hope this helps you.
 
little fruitcake said:
I know this sounds silly, but I was having trouble at night with my legs and hips at night. My bestie told me to put a bar of old fashioned Ivory soap at the foot of my bed in between the mattress pad and the fitted sheet. It works amazing. No leg or hip pain or having to rock them to sleep. Please try, its an inexpensive, non-medical solution. I hope this helps you.
Click to expand...

My grandma swears by this!

If I usually count myself to sleep. I'll start a 1 then go up to 100 and start over again till I'm asleep, it works really good for me. I might have to to it ten times but after that I'm asleep. Could you try listening to music, maybe put head phones in so it doesn't bother your husband. Listening to soft music could relax your body.

Is there any reason that you have to get up that early? If not sleep in a little later that might help.
 
Last edited:
I got up 7 times to go to the bathroom last night. i took a vitamin like suggusted and it seemed to help the rls. i dont have any soap yet so I havn't tried that yet. I did get up a bit later this morning. Husband just thinks I sleep to much so he wants me to get up with him.
 
Your husband does not have your brain and body, and does not struggle with same issues you do. I'm sure he means well, but if getting up early makes you feel worse, then don't do it. With the meds, I have to get 8 hours of sleep. If for some reason I have to get up early, I nap later in the day, or sleep in the next day to get back on track.
 
yes he just thinks I'll feel better if I do this, so i'll try for awhile and hope for the best.
I'm also stopping lexapro, 5 days off it now. feeling terrible right now but hopefully once its out of my system I'll feel better.
 
I wish I were there and could give your husband a good kick in the a**!!!

Some people just don't understand what your body's like when you have epilepsy. They just think that since they don't feel that way then you don't too. Show him your pill bottles, most of them say 'may cause drowsyness', this way he can see it's not your fault that you are tired.

I was on a med one time, sorry I don't remember which one though I've been on so many different ones, but all I did was sleep. It was all I could do to get out of bed to go to the bathroom. My parents actually woke me up and brought food into the bedroom and made eat because I just wanted to stay in bed and sleep and forced me to take a shower. I don't know how much weight I lost because of it. The dr took me off of that med.

I'm just glad that my husband understands about me sleeping alot. We don't sleep in the same bed for a few reasons. He snores too bad and I'm a huge bed hog. But the main reason is because he works and I don't so he usually goes to bed before 9 and get's up at 5 to go to work, I stay up later and sleep later. He come's in to say good by in the morning and has me call him when I take my meds (at 7) so he know's everything is going ok. I'll usually get up between 9 and 10 and depending on how tired I am it's usually after 11 that I'm in bed and I always take about a two hour nap in the afternoon.

He never complains about any of this. He even tells me sometimes that if I don't feel good (after having a seizure, or othertimes too) just to go to sleep. He even expects me to sleep almost the whole next day after I've had a seizure, not saying a word about me being passed out on the couch and not getting up. If I am up and moving around the day after a seizure he's really supprised about it and will sometimes tell me to go take a nap because he doesn't want me to end up having another seizure.
 
My husband really is just tring to help me feel better. he thinks sleeping alot just is making me more tired. He knows my meds cause drosiness. i'm stopping lexapro for that reason and some others. as I've been sitting here at the computer my eyes keep going to one side or the other for a second then back to normal, what is that.
 
Are you having something like double vision or blurry vision, I get this alot? My eyes also 'flutter' as I call it were they move back and forth really fast for just a second or two, it doesn't change my vision at all but it would drive me crazy. This hasn't happened in a while, but now that I say this it will probably start happening again - lol!

Some meds do cause vision problems. I think it's the Topmax that causes the double vision and blury vision (might be wrong though). I did ask my neuro about all three because I thought that they might be some type of seizure that I was having but he wasn't concerend about them, he said it's some things that happen on some meds.
 
No my eyes were like stuck to the side for a second then back to the middle and normal again.When I have the seizures people tell me my eyes flutter really fast and i dont answer them.
 
You must log in or register to reply here.
Back
Top Bottom