Simple partial seizure question

[Belinda5000]

I use lidodermpatch with 5%lidocaine for my back and I've never had any problems with my seizures because of it.

 

[MAB]

I use lidodermpatch with 5%lidocaine for my back and I've never had any problems with my seizures because of it.

I think we all react differently to different meds. Ambian (spelling?) and Benadryl both keep me awake all night, extremely restless.

 

[Tez_20]

I get the buzzing too, only not really a buzzing. More of a high-pitched beeping buzz ?????. Tez 20--I cover my ears too, and say "It's too loud", right before a complex...that's how my hubby knows to get me to the couch...

Dline mines high pitched and banging my ears is like a quick reaction for release...it can happen with me without a seizure occurring but your hubby sounds like mine way on the ball and knowing your symptoms :clap:

 

[Tez_20]

I looked at so of the info last night and it also talked about different meds that cause ringing/buzzing. I'm on at least 2 of them, Lamictial and klonipin but I take those everyday and thankfully don't have the buzzing every day. I really think most of it is related to the partials but all of my symptoms only affect the left side of my body but the ringing. I'm really not sure if the ringing is in both ears or just one ear, is that weird?

Hi MAB it's not weird how your sensoring the sound it's how your heads picking them up...next week I see my neuro and this will be definitely one thing which will be mentioned and also let you know the out come but I'm also on quite a few of those meds myself also on the list.

 

[MAB]

Yes please let me know what your neuro says about the buzzing I probably won't be seeing my neuro until the end of Dec. although I am going to call to see if she will increase my lamictial because I seem to be having quite a few ps. Thankfully the lamictial seems to have almost completely controlled the phantom odors. I'm only on 250mg per day so it's still a low dose and I would prefer to just stay on 1 anti-seizure med if possible. I already take enough meds and supplements.

 

[Tez_20]

Yes please let me know what your neuro says about the buzzing I probably won't be seeing my neuro until the end of Dec. although I am going to call to see if she will increase my lamictial because I seem to be having quite a few ps. Thankfully the lamictial seems to have almost completely controlled the phantom odors. I'm only on 250mg per day so it's still a low dose and I would prefer to just stay on 1 anti-seizure med if possible. I already take enough meds and supplements.

No worries as it's been a thing I've just put up with and never thought about it being related to my seizures but now you've mentioned it besides other members I'm going to ask, it's next Thursday...yours is a while of yet, every month I've got one thing or another on regarding appointments.
I never had ps's for years when mine started but the brain surgeon said in time people with seizure's develope them, mines either stale urine or bad motion smelling it really knocks me feeling sick.
That's a low dose your on..years back mine was high but never controlled mine one bit...well your on about meds I take meds for my seizure, nerves and anxiety, cancer and chemo meds for my Lupus and overlapping autoimmune diseases to slow down the B&T Cell rate....the bathroom episode is one joke mate :roflmao:

 

[MAB]

No worries as it's been a thing I've just put up with and never thought about it being related to my seizures but now you've mentioned it besides other members I'm going to ask, it's next Thursday...yours is a while of yet, every month I've got one thing or another on regarding appointments.
I never had ps's for years when mine started but the brain surgeon said in time people with seizure's develope them, mines either stale urine or bad motion smelling it really knocks me feeling sick.
That's a low dose your on..years back mine was high but never controlled mine one bit...well your on about meds I take meds for my seizure, nerves and anxiety, cancer and chemo meds for my Lupus and overlapping autoimmune diseases to slow down the B&T Cell rate....the bathroom episode is one joke mate :roflmao:

Wow, Tez, you have a lot going on.

I have heath insurance with $5000. deductible and $5000. out of pocket expense and I have already met both so everything now is no charge until Jan 1. I'm trying to get as many appointments as possible out of the way and stockpiling as many meds as possible before Jan. 1. I actually moved my neuro appointment from Jan to Dec. and am requesting some blood work that I would have put off. I have carpel tunnel but I don't want to take the time off from work to have it fixed. I have a suspicious spot on my face that i see a dermatologist about next week. Also going to call my lung doctor to see when my appointment is and move it to late this year if I can instead of waiting until next year. My husband just retired last month so we don't have as much income as we are used to having. He picked up 3 of my prescriptions today and they didn't cost anything but if I don't have insurance they would have been over $600, It will soon be time to pick up the other 4 that I take so it would be another $1500. without insurance. I can't afford to quit working and my employer has only promised us one more year of insurance after this year. I'm afraid to go on the exchanges but I will die without some of my meds.

 

[Tez_20]

Wow, Tez, you have a lot going on.

I have heath insurance with $5000. deductible and $5000. out of pocket expense and I have already met both so everything now is no charge until Jan 1. I'm trying to get as many appointments as possible out of the way and stockpiling as many meds as possible before Jan. 1. I actually moved my neuro appointment from Jan to Dec. and am requesting some blood work that I would have put off. I have carpel tunnel but I don't want to take the time off from work to have it fixed. I have a suspicious spot on my face that i see a dermatologist about next week. Also going to call my lung doctor to see when my appointment is and move it to late this year if I can instead of waiting until next year. My husband just retired last month so we don't have as much income as we are used to having. He picked up 3 of my prescriptions today and they didn't cost anything but if I don't have insurance they would have been over $600, It will soon be time to pick up the other 4 that I take so it would be another $1500. without insurance. I can't afford to quit working and my employer has only promised us one more year of insurance after this year. I'm afraid to go on the exchanges but I will die without some of my meds.

MEB I have friends in the states where they try and get appointments besides meds fitted in where the insurance is concerned, so I totally know what your doing but when you have blood work done I suggest getting tested for Lupus, as I read your profile strokes which I've had, carpel tunnel, seizures and now your skin..sounds abit suspicious to me that this lots coming from an autoimmune disease.
I really do feel for you mate as insurance is important, it's like the chemo med I take methotrexate in the states for a one shot alone it's $2000 where here it's free and some people I know have had to stop steroid shots which have helped the pain besides infusions and gone back to being doubled up in pain.

 

[MAB]

Yep, hubby has ulcerative colitis so we just hope he stays in remission. He will have insurance in 2 years when he tuns 65.

 

[Tez_20]

Yep, hubby has ulcerative colitis so we just hope he stays in remission. He will have insurance in 2 years when he tuns 65.

Hi MAB,

I am sorry to hear about your hubby and fingers crossed from my end I hope he keeps in remission and having to wait to years for insurance it's terrible, then there's the worry of your health ontop.

There is different doctors though in different parts of the US who do treat patients without needing insurance to cover them.

 

[MAB]

Hi MAB,

I am sorry to hear about your hubby and fingers crossed from my end I hope he keeps in remission and having to wait to years for insurance it's terrible, then there's the worry of your health ontop.

There is different doctors though in different parts of the US who do treat patients without needing insurance to cover them.

He is going to see his regular GI doc next week. We can cover the cost of an office visit but the medicines he prescribes would bankrupt us in no time. We had a scare last week or the week before but his stomach has settled down and since I also had the same problem we probably just had a virus or food poisoning.

 

[Tez_20]

He is going to see his regular GI doc next week. We can cover the cost of an office visit but the medicines he prescribes would bankrupt us in no time. We had a scare last week or the week before but his stomach has settled down and since I also had the same problem we probably just had a virus or food poisoning.

You was both lucky being unsettled like that and although it's settled down for your hubby and yourself...the discomfort alone with colitis is bad enough besides what he's got also, well I hope it was just a virus.
Would you like me to check on specialists who treat people without insurance cover for you...if not I totally understand

 

[MAB]

I think he wants to stay with his regular doctor but they do reduce the bill by 40% if someone doesn't have insurance. It's the cost of meds that are a killer but most drug manufactures have programs that assist with the cost. He has been getting free Nexium for the last 2 years because it is so expensive and our insurance wouldn't cover it. He also has GERD. The only other 2 drugs he takes right now are very cheap, high BP pill $4. a month and ativan, about $10. a month.

 

[Tez_20]

I think he wants to stay with his regular doctor but they do reduce the bill by 40% if someone doesn't have insurance. It's the cost of meds that are a killer but most drug manufactures have programs that assist with the cost. He has been getting free Nexium for the last 2 years because it is so expensive and our insurance wouldn't cover it. He also has GERD. The only other 2 drugs he takes right now are very cheap, high BP pill $4. a month and ativan, about $10. a month.

I really do feel for him MAB because GERD can be really troublesome...but as long as he's getting meds besides that's what counts but with these conditions you really do have to also watch where candida is concerned and I know for a fact that gluten irritates them both the same with me having severe IBS...I find it a nightmare and painful, I take spasm and lactulose for mine but the bloating really hurts me a lot...they ran tests from the beginning thinking it was Colitis and at the same time I told the gastro specialist that my Lupus can cause false readings on tests being done...so two tests was performed to make sure.

 

[MAB]

I really do feel for him MAB because GERD can be really troublesome...but as long as he's getting meds besides that's what counts but with these conditions you really do have to also watch where candida is concerned and I know for a fact that gluten irritates them both the same with me having severe IBS...I find it a nightmare and painful, I take spasm and lactulose for mine but the bloating really hurts me a lot...they ran tests from the beginning thinking it was Colitis and at the same time I told the gastro specialist that my Lupus can cause false readings on tests being done...so two tests was performed to make sure.

One thing that really helps my husband is canned coconut milk and coconut oil. He also uses fish oil.

 

[Tez_20]

One thing that really helps my husband is canned coconut milk and coconut oil. He also uses fish oil.

Well thanks for letting me know about coconut milk...forms of oil make me bad and I've really had to cut some foods out through the IBS and also swallowing with the sjogren's hardly any salivia no more for swallowing but I do eat a lot of fish.

 

[Tez_20]

:gnite: MAB and speak soon mate :hugs: