We have been dealing with a lot in the past few weeks with my 16-year old daughter. Either there's some new trigger in her environment that we don't know about, or her epilepsy has gotten worse: she had 5 seizures between July 18-24, more than all the seizures she has had since her diagnosis in September. All complex-partial with secondary generalization.
With 2 med increases and change in dosage schedule, we've had no more T/Cs thank god! But she is now having several short (30-60 second) episodes a day that may be simple partials - they feel a lot like her pre-seizure aura, although somewhat less intense. If they continue, her doctor will likely order a VEEG so that we can see if they are really seizure activity or not.
This whole week she has been absolutely exhausted and unable to participate in the summer program she was supposed to do. Some of that is probably due to the number of seizures she just had, and some to the med change (since July 18 her dosage of Onfi has been doubled). But I'm wondering if at this point it's the "episodes" that are the real problem.
We have never experienced her having simple partials before - they have always become CPs and then T/Cs. Do simple partials make you super tired as well? She's having 2-5 a day. It seems to me that she will be doing OK, then will have one of these episodes and after that it's like the life has been sucked out of her again. Thanks - I would love any input as we try to figure out what is going on.
With 2 med increases and change in dosage schedule, we've had no more T/Cs thank god! But she is now having several short (30-60 second) episodes a day that may be simple partials - they feel a lot like her pre-seizure aura, although somewhat less intense. If they continue, her doctor will likely order a VEEG so that we can see if they are really seizure activity or not.
This whole week she has been absolutely exhausted and unable to participate in the summer program she was supposed to do. Some of that is probably due to the number of seizures she just had, and some to the med change (since July 18 her dosage of Onfi has been doubled). But I'm wondering if at this point it's the "episodes" that are the real problem.
We have never experienced her having simple partials before - they have always become CPs and then T/Cs. Do simple partials make you super tired as well? She's having 2-5 a day. It seems to me that she will be doing OK, then will have one of these episodes and after that it's like the life has been sucked out of her again. Thanks - I would love any input as we try to figure out what is going on.