Army Vet
Stalwart
- Messages
- 238
- Reaction score
- 143
- Points
- 103
So, first let me say that I'm finally going to get a sleep study, provided via the VA (Veterans Affairs). However, there's a "funny" (annoying
) story that goes with it.
I've been getting phone calls for the last month (since they approved it) from the VA to remind me that I have an appointment on December 19 (yesterday, Thursday) @ 9 AM. Okay. Fine. Earlier this week, Monday, I decided to call the sleep center since I hadn't heard from them AT ALL. I figured I would've gotten a call directly from them or a letter (SOMETHING) to give me some more details as to where to show up, who to talk to (ANYTHING). The Do's and Don'ts of the situation (ie yes you may bring this, PLEASE DON'T bring that! etc). So I called and gave them my info. Hmmmm, we don't see anything for you on that date... Great! (good thing I called). So I asked them if they had me down at all?!? She looked and said, "Oh yeah. I see you're scheduled for 1/9/2020 @ 3:30 PM. Huh? Are you sure?? Yep...
So I called the VA back and asked them (TOLD THEM), hey, you've been "reminding" me about my "appointment" for a month now, yet I don't have it until 1/9/2020... wanna explain?? They couldn't. I went back to my approval letter... guess what the correlation was... yep, that date and time was the starting date the VA ~APPROVED~ for them to pay for the test and that I have 180 days to do it within. That same day (and the next day) I got another REMINDER of my "appointment" for the 19th. Sigh...
Anyway, now that you have that "entertaining" story, I have an appointment on the 9th (supposedly
). What is your opinion on sleep and if I were to find out that I have a sleep disorder of some kind and end up using CPAP machine? As weird as it may sound to say this, I ALMOST want to "have to" use/need one. I know it'll suck (blow actually
), but if it helps me sleep better and therefore helps my seizures, then so be it! Seems like every night, I wake up within 3-4 hours in the middle of the night and just toss and turn the rest of the night. It's been like that for a couple of years now.
That's been one of the most annoying things about our condition. THERE'S NO OUTRIGHT SOLUTION!! We're all different and certain things effect us differently. Like I've said before, if I knew what was causing them, then I'd just make sure to stop doing it (in turn, stopping my seizures).
Against CPAP? For CPAP? Experience with CPAP?

I've been getting phone calls for the last month (since they approved it) from the VA to remind me that I have an appointment on December 19 (yesterday, Thursday) @ 9 AM. Okay. Fine. Earlier this week, Monday, I decided to call the sleep center since I hadn't heard from them AT ALL. I figured I would've gotten a call directly from them or a letter (SOMETHING) to give me some more details as to where to show up, who to talk to (ANYTHING). The Do's and Don'ts of the situation (ie yes you may bring this, PLEASE DON'T bring that! etc). So I called and gave them my info. Hmmmm, we don't see anything for you on that date... Great! (good thing I called). So I asked them if they had me down at all?!? She looked and said, "Oh yeah. I see you're scheduled for 1/9/2020 @ 3:30 PM. Huh? Are you sure?? Yep...
So I called the VA back and asked them (TOLD THEM), hey, you've been "reminding" me about my "appointment" for a month now, yet I don't have it until 1/9/2020... wanna explain?? They couldn't. I went back to my approval letter... guess what the correlation was... yep, that date and time was the starting date the VA ~APPROVED~ for them to pay for the test and that I have 180 days to do it within. That same day (and the next day) I got another REMINDER of my "appointment" for the 19th. Sigh...

Anyway, now that you have that "entertaining" story, I have an appointment on the 9th (supposedly



That's been one of the most annoying things about our condition. THERE'S NO OUTRIGHT SOLUTION!! We're all different and certain things effect us differently. Like I've said before, if I knew what was causing them, then I'd just make sure to stop doing it (in turn, stopping my seizures).
Against CPAP? For CPAP? Experience with CPAP?