Sleepy, forgetting stuff and confised

[danzarooni]

According to my husband I had 7 seizures yesterday. I started posting here yesterday and don't really remember it well. Yesterday is very vague to me. Today too. My brain is cloudy and I can't seem to think straight. Is this normal? My last seizure was around 11 this morning while asleep at my parents' house. They were "babysitting" me so husband could take the kids out for fun times.

Oh and I've head the worst headache since yesterday around 10am. Horrid. I've taken excedrin and motrin no help. Neck is very stiff and spree and whole body is achy. But the headache is the worst.

Anyone have this happen to them?

 

[epileric]

Ohhhh, So sorry you have to feel so awful DanZ. I'm assuming your seizures are convulsive?

I know mentally you're describing how I feel even after a larger partial seizure. I've gone days where I'd have another seizure before I could get a chance to feel better mentally.

I usually take a nap after such seizures but I've also found that if I try to do something the after (post-ictal) effects seem to wear off faster. Of course this never happens unless I'm committed to some responsibility.

 

[survivor]

Take rest dear! If u had so many seizures u need to take care and consult ur neuro and ask why! The symptoms u are explaining are commen after the seizure. Thoughtless brain, feeling of being exhuasted, confusion and all. But what I was thinking that how u could get so many seizures together! Got ur blood profile done? What does ur neuro say? Take care!

 

[danzarooni]

According to my paperwork (this is all new to me) I have generalized seizures, convulsive. I see my neuro (brand new to me as well) on Tuesday.

My blood is good except I am hyperthyroid (TSH .001) and am on 5 mg methimazole for that.

Turns out my husband is pretty sure I had a horrible reaction to the Keppra (500 mg 2x a day) and he took me off it last night. I am living without it until we see the neuro. I had 2 seizures this morning but none since. He researched a ton and found most of my symptoms looked like bad side effects of the Keppra. I guess I was seeing things, hearing things, and I really don't remember the last like 60 hours very well. I remember a few things here and there but only hazily. He said he almost took me to the mental hospital but held out.

I'm thinking mostly clearly now but weirded out how much I dont remember. I'm still tired but sleeping not as crazy much and my headache is gone.

Just wanted to update and thank you for the replies!

 

[epileric]

Turns out my husband is pretty sure I had a horrible reaction to the Keppra (500 mg 2x a day) and he took me off it last night.

I hope you're tapering off the Keppra slowly. I was on it & I know how awful the side-effects can be but stopping suddenly can increase the chances of more severe seizures.

 

[danzarooni]

Oh gosh. Well no. He stopped it cold turkey. But, I've only been on it for about a week... I'm brand new to seizures and seizure meds.

 

[epileric]

If I remember properly (don't quote me) it takes 3-4 days for keppra to reach therapeutic levels. A week isn't long but I'd be careful.

 

[danzarooni]

Yikes ok thanks

 

[danzarooni]

I'm thinking maybe these are non epilepticseizures after all?

 

[epileric]

Personally I think you should take one a day for another 2 or 3 days.

Of course this is what I think. You should probably ask the hospital (or medical line if you have those in the US) what would be the best thing to do or call your neurologist ASAP but I think it best to take one today until you are sure how to proceed.

 

[valeriedl]

I have the same things happen to me after I have a seizure. I'll have the worst headache in the world and be very tired. I'll usually fall asleep within an hour after having the seizure and sleep the rest of the day and usually most of the next day too.

As far for the headaches nothing that I've taken works for them. My neuro gives me headache pills and even sent me to a headache clynic (I think that's what it was called). They gave me a shot to take for the headache but it does nothing. My body just doesn't react to pain meds. I've got back problems and the dr gives me vicodone for it, but that does nothing. He started giving me injections in my back, that helps some and I'm not having it cramp up on me with pain shooting down my leg as often but my back itself is still sore. I think it's from the meds I'm on for epilepsy that may make the pain meds not work.

For the headachs I usually get a bag of ice, wrap in in a towel and put it over my head. I'll put a pillow on to of that to keep out the light. I might listen to my ipod with some music but if hearing things hurts my head then I'll put in ear plugs. There isn't anything I can do but wait till I fall asleep and even then when I wake back up it's still hurting like crazy.

When I was first diagnosed after my seizures I could never think straight. I'd loose the memory of what I did that day and sometimes even what happened days before that. I've had epliepsy for about 8 years now and it still happens but not quite that bad.

Also as the others said it's not a good idea to just stop taking your medicine cold turkey. Any time the neuro has taken me off of a med he weans me off slowly. Also as said above some meds take time to start to work so don't expect to take it today and to stop having seizures tomorrow. Even when the neuro ups my meds he has to do that slowly also.

 

[epileric]

I'm thinking maybe these are non epilepticseizures after all?

If you've suddenly had an increase in seizures when stopping your meds I'd wonder about that.

 

[epileric]

Why would you think they're non-epileptic seizures?

 

[danzarooni]

My husband feels they are always brought on by anxiety, even in my sleep. I guess we will find out with the neuro thinks about my EEG.

 

[epileric]

My husband feels they are always brought on by anxiety, even in my sleep. I guess we will find out with the neuro thinks about my EEG.

Your husband should know that stress, anxiety & even excitement are very common triggers for epileptic seizures.

 

[Ghots]

I would be very careful about not taking the prescribed drugs, and I would highly recommend that you call your doctor, or a doctor before making the decision, or allowing someone else to make the decision for you to stop taking your prescribed AED.

I say this very respectfully, and no offense is meant. For all I know, your husband may be a doctor.

However, from my personal experience I can give you a cautionary tale about going off the meds like that. It started with me going off my meds because I was convinced that I could not possibly have epilepsy, and ended with me in an emergency room with a concussion, several lacerations, stitches required, and it took over a month before I was fully recovered from my additional injuries.

I cannot say this enough; listen to your doctors. Keppra can be bad for some people, I know it was for me. But please talk to a doctor before deciding to stop the meds. Those meds could save your life.

Best of luck.

 

[danzarooni]

Thank you so much for your replies. I do appreciate your input. I wish my neuro appt was today not tomorrow!! My husband is not a doctor, and it WAS a huge and hard decision to do what he did taking me off. He did call both my father and my sister (neither are doctors either) before making this decision. All that said I still don't remember 3 days straight and from what I hear, and what my husband documented se on video and I have asked not to see is extremely scary.

Normally I would never stop a med withOut a dr consent. I am the type of person who follows "authority figures" to a fault. As I said I'm on psych meds and I've always taken them exactly as prescribed.

Anyway, after being off it for as long as I have now and having my appt tomorrow and after how I was, I'm thinking it is best I wait out til tomorrow. I should add I have pretty much been confined to the couch except with an adult with me to the restroom (my husband) until my appt. He's definitely not taking this lightly and although he believes they are non epileptic he does think I could have another at any time so he's being very precautionary.

Again, I appreciate the concern, I do! I'm also honest to a fault, so I'll be honest in saying I won't be taking any more Keppra. And I will do whatever my neuro days tomorrow as long as it's not Keppra.

 

[danzarooni]

Your husband should know that stress, anxiety & even excitement are very common triggers for epileptic seizures.

Wow, we did not know that. I guess we hope to learn a lot tomorrow at my appt.

I hope I have not offended anyone here. Just wanted to add that

 

[epileric]

I hope I have not offended anyone here. Just wanted to add that

You didn't offend me....... I just hope I didn't sound offended.

 

[Endless]

Hey, Valerie,

Did your doctor say what kind of headaches you have? If they are migrains.... Maybe it's time for your docs to try a prophalactic headache medication. There are lots of them. Many of our seizure meds are also anti-migraine drugs. You could kill two birds with one stone.

I have the same things happen to me after I have a seizure. I'll have the worst headache in the world and be very tired. I'll usually fall asleep within an hour after having the seizure and sleep the rest of the day and usually most of the next day too.

As far for the headaches nothing that I've taken works for them. My neuro gives me headache pills and even sent me to a headache clynic (I think that's what it was called). They gave me a shot to take for the headache but it does nothing. My body just doesn't react to pain meds. I've got back problems and the dr gives me vicodone for it, but that does nothing. He started giving me injections in my back, that helps some and I'm not having it cramp up on me with pain shooting down my leg as often but my back itself is still sore. I think it's from the meds I'm on for epilepsy that may make the pain meds not work.

For the headachs I usually get a bag of ice, wrap in in a towel and put it over my head. I'll put a pillow on to of that to keep out the light. I might listen to my ipod with some music but if hearing things hurts my head then I'll put in ear plugs. There isn't anything I can do but wait till I fall asleep and even then when I wake back up it's still hurting like crazy.

When I was first diagnosed after my seizures I could never think straight. I'd loose the memory of what I did that day and sometimes even what happened days before that. I've had epliepsy for about 8 years now and it still happens but not quite that bad.

Also as the others said it's not a good idea to just stop taking your medicine cold turkey. Any time the neuro has taken me off of a med he weans me off slowly. Also as said above some meds take time to start to work so don't expect to take it today and to stop having seizures tomorrow. Even when the neuro ups my meds he has to do that slowly also.