Sleepy, forgetting stuff and confised

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it could be both NES & epilepsy

I do have both. I have generalized epilepsy with tonic clonic and absence seizures and myoclonic seizures. I have had migraines since my first tonic clonic which caused a concussion. No migraine meds work. I'm no doctor but it could be a combo of the thyroid disorder and your epilepsy. I'm seeing a rheumatologist for my fibromyalgia and he says that if your thyroid and metabolism is off it could effect the way your brain fires which is worse for epileptics cuz our brains don't fire properly anyway. Talk to your thyroid doc as well as your neurologist. Maybe by changing your meds things can get better. Also, if you're hearing and seeing things, you're not crazy...it could be temporal lobe epilepsy which is difficult to diagnose. Take care.
 
I am so glad today is my neuro appt! Ugh! I only saw things whole on the Keppra. Not any more. I've had two seizures and two weird episodes after being off the Keppra, one where I was hyperventilating and shaking and couldnt stop for around 2 min (my seizures are usually 30-45 sec) and one where I just couldnt move at all and was freaking out which was in the middle of the night but I'm sure it was real and not a dream.

Still my husband is totally sure these are nES and plans to tell the neuro. He says they only happen when I am anxious or if I am asleep. Everything you guys have said still says it could be epilepsy so I'm stuck unknowing. I'm normally not aware of my seizures until he's told me I've had one so I have to trust him. I really hope my neuro has some ideas. Ive been tracking my meds/sleep/ episodes and moods so hopefully something will make sense
 
Your husband means well, but I think the judgment about whether the seizures are epileptic or non-epileptic is probably best made by a professional. It's not always to distinguish the two of course (and some people have both kinds), but if you are having the seizures in your sleep then that's a very strong indication that they ARE epileptic in nature.

Let us know how your neuro appointment goes.
 
danzarooni said:
I am so glad today is my neuro appt! Ugh! I only saw things whole on the Keppra. Not any more. I've had two seizures and two weird episodes after being off the Keppra, one where I was hyperventilating and shaking and couldnt stop for around 2 min (my seizures are usually 30-45 sec) and one where I just couldnt move at all and was freaking out which was in the middle of the night but I'm sure it was real and not a dream.

Still my husband is totally sure these are nES and plans to tell the neuro. He says they only happen when I am anxious or if I am asleep. Everything you guys have said still says it could be epilepsy so I'm stuck unknowing. I'm normally not aware of my seizures until he's told me I've had one so I have to trust him. I really hope my neuro has some ideas. Ive been tracking my meds/sleep/ episodes and moods so hopefully something will make sense
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Hi Dazarooni, hope you get some great help from your neurologist.

I just wanted to add that the the seizure you described in the middle of the night which was real and not a dream - well i have this too but i am pretty sure this is sleep paralysis and i only started having this when i started on my lamotrigine meds. It makes you really anxious because you feel awake but you can't move, however, if you stop being anxious when this happens it becomes rather like a very very short lucid dream which you can take control of.

I hope some of the more knowledgeable members can shine some light on this as i am not sure if my knowledge on the matter is quite up to scratch being a newbie to all of this.
 
Thanks more everyone! My neuro would like to start me on topamax and gave me a scriPt for that and has ordered a VEEG. She said it takes 3-4 weeks to get in for that so I will hear soon when that will be. She's unsure still if these are epileptic nor nES in nature, but hopefully this will tell us for sure.

I guess on my EEG at the hospital two weeks ago it showed some slowing on the left side of the brain during the hyperventilation portion. Right now that's the only thing they've seen on a test.
 
I have the exact same thing. Most of it I attribute to the medications. I know the memory loss, confusion and headaches (very similar... runs from base of my skull up, around and ending behind my eyes). I know it gets worse in the hours after I take my meds. I tend to have several mini-breakthrough seizures a day. I deal with them rather than up my dosage again. If they get worse, then I guess I have no choice. but I am definitely VERY forgetful and have a hard time focusing. the term "brain cloud" from Joe and the Volcano seems very applicable. And the fatigue... feel exhausted all day. makes work really rough. find myself drinking way too much Mtn. Dew!

The headaches often end up turning in to full migraines if I don't get them under control quickly. They are definitely the worst part for me as well. Anyhow, I think what you are experiencing is fairly common and sucks for most of us. Definitely talk to you Neuro and tell them exact experiences. Maybe they can make some adjustments on your meds, or try something that may have less side effects or control the seizures better.

Good luck and keep posting here... I know it has been helping me a lot just to share and to hear other peoples experiences and know I'm not alone.
 
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