I kind of feel a bit of a fraud being on here as we've not been told Kayson actually has E, but the lovely Julie added me, and i'd be really greatful if anyone of you had any views on what happens to little man...
When he was about 5months old, he had his first 'fit' (i call them fits as i dont really know what else to call them) he closed his eyes, brought his hands to his head, shook like he was cold and then cried for about 30minutes after...we were told by NHS to 'put it down to one of those things' and he 'amy never had another one' and to be honest, that was that....
Kay turned 1 in July, Just before his first birthday he had another one...unfortunately i only saw that last of the episode (shook like he was cold, eyes closed and stiff, followed by hysterical crying for an hour after)
Seeing the tail end of that one, has lead me to believe he had one in the night at about 10months old.....
2 weeks ago, he had another one, shook like he was cold, eyes closed hands clenched then (as usually he was sitting down when having them) he tried to walk to me, and he was like a little drunk person couldnt get to me properly, then we had the hysterical crying...
and again another one yesterday..
and another today, although not as bad and the crying after only lasted about 10minutes
we are being referred to a pedeatrician (just a general) which i assume we will just get asked loads of questions and go from there...
I just hate being in the dark, the GP refuses to give me any idea what it could be and i feel so sorry for little man, he hardly ever cries, and to hear him cry like that after is worse for me, than the actual 'fit'.......
Please feel free to ask any questions...im trying to keep a diary of what happens to him to give the GP, but even a small idea would be nice to keep me out of the blue.
When he was about 5months old, he had his first 'fit' (i call them fits as i dont really know what else to call them) he closed his eyes, brought his hands to his head, shook like he was cold and then cried for about 30minutes after...we were told by NHS to 'put it down to one of those things' and he 'amy never had another one' and to be honest, that was that....
Kay turned 1 in July, Just before his first birthday he had another one...unfortunately i only saw that last of the episode (shook like he was cold, eyes closed and stiff, followed by hysterical crying for an hour after)
Seeing the tail end of that one, has lead me to believe he had one in the night at about 10months old.....
2 weeks ago, he had another one, shook like he was cold, eyes closed hands clenched then (as usually he was sitting down when having them) he tried to walk to me, and he was like a little drunk person couldnt get to me properly, then we had the hysterical crying...
and again another one yesterday..
and another today, although not as bad and the crying after only lasted about 10minutes
we are being referred to a pedeatrician (just a general) which i assume we will just get asked loads of questions and go from there...
I just hate being in the dark, the GP refuses to give me any idea what it could be and i feel so sorry for little man, he hardly ever cries, and to hear him cry like that after is worse for me, than the actual 'fit'.......
Please feel free to ask any questions...im trying to keep a diary of what happens to him to give the GP, but even a small idea would be nice to keep me out of the blue.