Hi TT - Rebecca had her first seizure June 2006. She had just come home from an ice skating practice. That morning she had pushed herself really hard for almost 3 hrs. Her dad had taken her to starbucks before, and she had one of those creamy frappichino drinks. Very sweet, with a lot of caffeine. Being rather tired when she came home, she sat at her computer and was IMing about 5-6 people at the same time. I did not witness this, but gathered the information later, once I figured what had happened. She said her left hand started to shake, her head turned to the left. She couldn't do anything and she says she must have fallen, because she found herself on the floor with a bump on her head (from the edge of the desk). I thought she was sleeping, since I suggested that she looked tired and should rest. The next thing I knew she was in the bathroom and told me she had vomited. I helped her and then made sure she went back to bed. Later I went to check up on her and found her on the rug in the bathroom asleep, so I let her be.
Through out the day I gave her straight chicken broth from the can...(has MSG right on the label) and she didn't want anything else. At around midnight I went to turn out the light at the bed (she had fallen asleep in my bed), and she turned over and started to seize. I had never seen a seizure before and I immediately called 911. She was not breathing, and her eyes were open. We spent the night in the hospital.
I believe today, that diet and MSG lowered her threshold so that the stress she was under, started the seizures. It took a while before I realized that diet was an active ingredient. The meds I believe caused more. The pressure of the situation caused even more, and not finding answers was the icing on the cake.
Rebecca has not been paralyzed but she has had vision loss, amnesia, behavior changes, and extreme body aches.
