mzollinger
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Our family sure has been through a lot since my son had his first seizure at school March 8th! The first 2 seizures were 12 days apart; both at school and in PE. After the second seizure, we were referred to a nuerologist and an EEG was done. The EEG suggested focal seizures on the left side of the brain. When we saw the neurologist, he also ordered an MRI and suggested my son had partial seizures and were going to treat it with trileptal. About 3 weeks later, my son had another seizure at school while still on the medication...the same type...another grand mal. We have upped his dosage to the full dose for his weight he can have, and continues to have seizures...I suspect he's having them at night while we are sleeping, because I'm pretty sure I've seen a couple that looked questionable...that when I described to the nurses at our Dr.'s; they suggested it was a tonic seizure. His last seizure was different; also at school- he dropped and lost all muscle tone. Before that, he was dazed and confused and wandering. While his class went in one direction, he went in another. He couldn't walk for a while...when he could, he could talk and respond, even though it was delayed. But, he doesn't remember what was being said, or who was saying it asking him about it later. I also found out that when I was talking with him after his last seizure, he didn't even know who I was...and said, 'Some lady was talking'... Crazy!
So, after all these weird seizures we've been seeing and questionable behavior, they admitted him to the hospital for a vEEG and literally NO JOKE...he had so much high voltage spikes every few minutes that they actually released us a day later; even though they told us to be prepared to stay the whole week. I was glad they got the information they need, but terrified my son is a walking time bomb while ON medication, that they would able to see enough so quickly to now diagnose my son with Primary Generalized Epilepsy. He has not specified the category yet. I'm dumbfounded and not sure how to take all this in. I was told that he will not grow out of this; as was believed when they said he had partial epilepsy. We are now weaning him off the trileptal and putting him on divalproex (a generic). He has had no side effects so far and no more seizure activity so far...however, his seizures are always sudden and out of the blue...so, it's hard for me to not watch him like he's a walking time bomb seeing what was literally going on in his brain. It was sooo crazy to see that!
So, after all these weird seizures we've been seeing and questionable behavior, they admitted him to the hospital for a vEEG and literally NO JOKE...he had so much high voltage spikes every few minutes that they actually released us a day later; even though they told us to be prepared to stay the whole week. I was glad they got the information they need, but terrified my son is a walking time bomb while ON medication, that they would able to see enough so quickly to now diagnose my son with Primary Generalized Epilepsy. He has not specified the category yet. I'm dumbfounded and not sure how to take all this in. I was told that he will not grow out of this; as was believed when they said he had partial epilepsy. We are now weaning him off the trileptal and putting him on divalproex (a generic). He has had no side effects so far and no more seizure activity so far...however, his seizures are always sudden and out of the blue...so, it's hard for me to not watch him like he's a walking time bomb seeing what was literally going on in his brain. It was sooo crazy to see that!