Our little man had a very interesting speech appointment today. He has been assessed at just over 6 month delayed with his speech, he's almost 2 1/2. She said this is based on today's appointment which is a good day for him so when he is in his bad periods it would be a much larger delay.
She said she will look at getting us to use picture cards with him for the periods when he is unable to communicate verbally and is also going to come out to his child care and observe him there as she said he may be more or less verbal in that environment. His 45min lasted almost 1hr 45min so I was very impressed overall. He dose have a few autistic traits but as she said so do most 2 1/2 yr olds.
I was very interested in 2 things she mentioned. The first she said it sounded like he may have metabolic issues the second was she asked me re his head size and I showed her the graph and the sudden spike which happened, only in his head size, when his issues really became pronounced at 7 1/2 months old. She then asked has he seen a genetics specialist re this as that can be related to a genetic disorder. A genetics specialist is one of the specialists he hasn't seen.
Like the other specialists who have seen him she said he is a contradiction as he is very low in some areas and fine in areas which are linked.
So the mystery continues with our little man.
It was so nice today though that before his appointment he came into my work for 20minutes and everyone commented on how it was the first time they have seen his eye's so live and him interacting with everyone so much. Usually they see him when I have had a call from child care, at my work, that he is having a bad day more seizures than usual etc and I go and collect him so it was nice for my friends to share in how wonderful a little boy he can be when everything is "ok"
I will make sure I mention the comment re genetic testing to his neurologist and paed when I see them next.
She said she will look at getting us to use picture cards with him for the periods when he is unable to communicate verbally and is also going to come out to his child care and observe him there as she said he may be more or less verbal in that environment. His 45min lasted almost 1hr 45min so I was very impressed overall. He dose have a few autistic traits but as she said so do most 2 1/2 yr olds.
I was very interested in 2 things she mentioned. The first she said it sounded like he may have metabolic issues the second was she asked me re his head size and I showed her the graph and the sudden spike which happened, only in his head size, when his issues really became pronounced at 7 1/2 months old. She then asked has he seen a genetics specialist re this as that can be related to a genetic disorder. A genetics specialist is one of the specialists he hasn't seen.
Like the other specialists who have seen him she said he is a contradiction as he is very low in some areas and fine in areas which are linked.
So the mystery continues with our little man.
It was so nice today though that before his appointment he came into my work for 20minutes and everyone commented on how it was the first time they have seen his eye's so live and him interacting with everyone so much. Usually they see him when I have had a call from child care, at my work, that he is having a bad day more seizures than usual etc and I go and collect him so it was nice for my friends to share in how wonderful a little boy he can be when everything is "ok"
I will make sure I mention the comment re genetic testing to his neurologist and paed when I see them next.