Started Xcopri. Just up to 50mg curious about some stuff

[stuartbungle]

Hi
About a year (ish) was put on 200 mg (100mg AM and 100mg PM) of Briavict, was always told would never be put on Keppra (the rage issues, multiple things here; alot not allowed to discuss on this site) did my research, and as it was 50/50 with the rage issues from peoples experience. So I agreed, Got through a number of telephones (for reference they make good projectiles) in the first few months and became angry moody, had the dosage decreased slightly (25mg - AM) by Neuro and 10mg Clozabam (PM) added, found I was still a little more than moody / angry so at my request (Raj wasn't keen about this, assume at the end of the day it is my choice to take the tablets) I asked the Briavict to be reduced again so was on 150mg (50mg in AM) and still on the Clozabam, but that has been moved so I have it in the AM; About 5 weeks ago started Xcopri now, currently just started taking 50mg and will carry on up to 200mg (and assumption be fed more of it, depending) hopefully before this we will reduce the Clozabam and Briavict,

MY QUESTION : DOES ANYONE KNOW WHAT IS AFTER XCOPRI? or will they just add stuff? I
If so, anybody know what that could be?

I'm aware, I'm not quite having enough seizures to justify surgery - have looked into this.


Thank you in advance

 

[Sabbo]

Hello. I have simple & complex partial seizures. I'm on Xcopri--300mg/day along with 500mg of Zonisamide/day. As far as I know there is no other AED out there after this. Recently at the end of December, I had breakthrough complex partials after my longest seizure-free stretch (nearly 8 months). My neurologist wanted to raise my dose to 350 mg/day, but I couldn't do that due to the copay my insurance would charge for the extra Rx. As far as I know, currently, they can only keep raising the Xcopri to its max dose and add other AEDs along with it.
As soon as I begin having breakthrough complex partial seizures, I often joke with my neurologist or nurse that my brain is "becoming immune to this new AED". I have taken/tried EVERY AED out there for complex partials. Within a short time (less than 1 year) I always begin having breakthrough seizures when taking those that I'm not allergic to.
In the same way, when on AEDs which required monthly blood levels, that I'd joke that they should just stick a cork in my arm. I've become SO USED to the needles for blood draws that I no longer feel the needles.

 

[suebear]

Hi
About a year (ish) was put on 200 mg (100mg AM and 100mg PM) of Briavict, was always told would never be put on Keppra (the rage issues, multiple things here; alot not allowed to discuss on this site) did my research, and as it was 50/50 with the rage issues from peoples experience. So I agreed, Got through a number of telephones (for reference they make good projectiles) in the first few months and became angry moody, had the dosage decreased slightly (25mg - AM) by Neuro and 10mg Clozabam (PM) added, found I was still a little more than moody / angry so at my request (Raj wasn't keen about this, assume at the end of the day it is my choice to take the tablets) I asked the Briavict to be reduced again so was on 150mg (50mg in AM) and still on the Clozabam, but that has been moved so I have it in the AM; About 5 weeks ago started Xcopri now, currently just started taking 50mg and will carry on up to 200mg (and assumption be fed more of it, depending) hopefully before this we will reduce the Clozabam and Briavict,

MY QUESTION : DOES ANYONE KNOW WHAT IS AFTER XCOPRI? or will they just add stuff? I
If so, anybody know what that could be?

I'm aware, I'm not quite having enough seizures to justify surgery - have looked into this.


Thank you in advance

I can only give you my experience based on information I've had with medication. I've taken 32 medications from birth up to now; medication #32 is Xcopri. I am someone that has many issues with medication hence the many medications over the years.

The benefit we have found with combining this medication to the few others I am taking? Xcopri is doing a fantastic job at controlling the seizure activity in conjunction with Aptiom, Vimpat, Topomax, and Tegretol. An additional comment I would like to say regarding Xcopri is it as at the lowest dosage along with all the others as my epilepsy specialist and I have found that low dosage works best for my health needs.

 

[Sabbo]

For me, Xcopri is AED number 14 that I have taken since my diagnosis in1987. If I include combinations (& increases in the doses as separate number) of AEDs, I've taken at least 20. The first AED was THE WORST for me--Tegretol. The reaction I had to it hadn't been seen by the neurologists at the hospital. It caused an EXTREMELY itchy rash all over my body, & a VERY high fever. I also lost approximately 85% of my hair, which never grew back. I can't use any AED chemically related to it. One neurologist I had wanted to add Lamictil when I was on 400mg Vimpat & still having breakthroughs, but less than a week after starting it, I felt the SAME type of rash that Tegretol caused beginning to spread on my upper back. The neuro said to immediately stop it.