Staying alone

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

J

Jhagman

New
Messages
3
Reaction score
0
Points
0
Which of you lives alone or finds yourself staying alone overnight occasionally? I’ve just had some recent tonics, they come every few months. In fact, I’m typing this from my bed in the EMU where I’ve languished for a week NOT having a seizure when the doc needed me to have one. Anyway I’m getting out tomorrow and my wife is scheduled to go on a business trip this W-Fri. She is super worried and wants to cancel the very important trip. What do you or would you do when something like this comes up? We don’t have any family or close friends in the area.

Thanks- Jason
 
Hi Jason,

Everybody has their own opinion but I have stayed home many times while my husband has been gone and I've had seizures. I've had seizures for 46 yrs. and even when I was in my teens I was on my own at a boarding school for 3 yrs. and had no family around me but I was okay even when I had my seizures. Personally I don't like to have to depend on others and I figure if Elton John can travel and sing on stage and he's had seizures I will be okay also. I wish you the best of luck and May God Bless You & Your Family.

Sue
 
I wind up staying on my own at lest once a month for 3/4 days, my wife is a theatre nurse. I have had plenty of seizures over the years, even like Porkette in boarding school, I do not like depending on people either and epilepsy does not rule my life or yours and nobody can help me during or coming out of a seizure and you are the same way. Yes your wife will worry as well, just like mine but in truth they have to live there lives and you to deal with yours which is not easy but it has to be done.
 
I live by myself and have for the last 5 years. I still have seizures when I'm alone but I manage. I have a friend that calls and checks on me every day because she wants to and not because I ask her to. I have been doing fine.
 
I had already moved out of home when my seizures retuend in 2002 when I was 24. I have always lived on my own and managed fine with my seizures.
Most of my seizures are partial seizures but I have had the odd tonic clonic.

Where I used to live I had a good neighbour who kept an eye on me plus i spoke to my mum daily. My seizures have reduced a lot since my surgery in 2001 & its now just the odd partial which are often at home & I tend to get myself on the couch before they happen.
 
I live on my own. My seizures are well-controlled now, but I lived on my own even when they weren't. But everyone has a different comfort level for being independent or alone -- if you and your wife aren't comfortable with you being alone, maybe you could hire someone to check in on you. You could check in with your wife regularly via phone or text. And for the future, it would be good to get to know your neighbors -- if nothing else, they can hold onto a spare key for you.
 
Nakamova said:
You could check in with your wife regularly via phone or text. And for the future, it would be good to get to know your neighbors -- if nothing else, they can hold onto a spare key for you.
Click to expand...
After my seizures returned in 2002 we got a key cut for my old neighbour in case she needed to get in. I also spoke to my Mum 3 times a day, it felt a bit over the top but i did it to make her happy because other wise she worried lol.
But after the surgery I told mum we were cutting back on the phone calls and now its down to once a day. Mum will call me on the weekends to say good morning & ill call on the week nights when i get home from work.

I moved end of 2016 & have only spoken to my neighbours once but if worse comes to worse my best friend lives in the next street lol.
 
I am alone all day, while my husband's at work & kids are at school. I've stayed alone overnight, too, when his job required it, & the kids weren't there. The scary part is many of my dangerous seizures have occurred while other people were at home, but asleep or just in other parts of the house.
 
My husband works nights and sleeps most of the days. When he's at work I let him know when I go to bed at night and get up in the morning to take my meds. I do have family that live next door so if he calls or texts me when he's at work and I don't answer then he'll call someone to make sure I'm ok.

I usually don't have any type of aura before a seizure and I very rarely know that I've had one unless someone is there to see it happen so I know I've probably had several seizures when he isn't home or asleep.

The main thing I don't do when he's not at home is cook on the stove or oven. There have been several times, even when he's at home sleeping, when the smoke alarm has gone off and he'll come into the kitchen finding me having a seizure with something burning on the stove.
 
That's what is scary for me, too. My complex partials also occur w/o auras. Unless another person witnesses what's going on, or I do something to myself/my surroundings I am completely unaware of its occurrence. I've given myself second & third degree burns at least 6 times during them. I don't open the stove w/o another person present, so who knows what I'm doing those seizures!
 
You can live your whole life in fear that something will happen and it never will. Don't let a medical condition like epilepsy rule your life, it's not worth it.
 
You must log in or register to reply here.
Back
Top Bottom