Strange question

[gnault]

This may seem like a strange question but what positive thing or things have resulted in your life since being diagnosed with this life changing thing called epilepsy? One of the things for me is "meeting" people on this forum that have similar stories or issues and how they live every day. Sharing stories, experiences help us to either help each or see glimmers of hope. There is healing in many ways in finding others that truly understand. It may not rid us of epilepsy but it helps when we encourage each other. That'said what I have been blessed by so far is the people that have exchanged posts with.

 

[Fedup]

gnault

Well said, I think one of the things I have gotten out of this life is a resolve to carry on and to try and do better.

 

[nicholas:)]

Well said gnault and Fedup. I would not wish epilepsy on anyone, but not to be alone in this helps, inspires, and brings together a diverse community of people who somehow find common ground and who share their time, knowledge and interests.

 

[Nakamova]

Not so strange a question gnault...
http://www.coping-with-epilepsy.com/forums/f23/how-has-epilepsy-made-you-better-person-25491/

 

[AlohaBird]

Not strange at all.

Having a seizure disorder has made me become much more aware of my health in general. I might very well end up living longer because of cleaning up my diet/lifestyle factors.

 

[CQ:)]

Not a strange question at all.

I've met some great people through epilepsy forums/ pages, a couple of them have become close friends.
It has helped me become a little more confident in myself & made me realise that having epilepsy won't stop me living my life.

 

[Jezy]

gnault, I would have to say too that the stories of people on this forum has been a blessing. I have had help and support from various people but despite the years of on again off again seizures I have had little interaction with people who have dealt with some of this issues discussed here, it is very refreshing .

 

[gnault]

gnault, I would have to say too that the stories of people on this forum has been a blessing. I have had help and support from various people but despite the years of on again off again seizures I have had little interaction with people who have dealt with some of this issues discussed here, it is very refreshing .

I find often that the exchanges on the forum refreshing in a way because our spouses, boy / girl friends and even family members often don't understand fully. This also helps me to understand many things as I have been controlled since my one tonic clonic seizure. I have a number of auras or what I suspect to be auras over the last year or so. People who live with everyday easily understand or have a better ability to understand. I look forward to continued reading and sharing in posts.

Sent from my SM-T350 using Tapatalk

 

[RanMan]

l've learned that there are others around like me and by discussing my Epilepsy issues on this board, I don't have to feel so lsolated.

 

[Jezy]

gnault, true it is hard for a person who is emphatic such as a friend or partner to understand what you go through or your triggers despite their obvious caring. Look forward to hearing more from you.

 

[seagull]

I don't think my e is responsible for me trying to do better I will never know

 

[Maidenminx]

I have found I appreciate things more. Knowing ventilation might not work next time I go into status really helps. My kids are learning medical procedures, and how to cope in an emergency.
And, yes, it has helped me meet many wonderful people online.

 

[N Sperlo]

E is that thing that has steered my life in ways of creating relationships and experiences that I can't begin to calculate how it truly effected my life. That is in essence what life is all about with or without any "disability".

 

[Dignan]

I think its made me more appreciative of the time I do have and the time within that when I feel good. Life is short, and the time you are ambulatory is shorter still, so take of advantage of the time you have and don't sweat meaningless everyday things.

Overall, I think its made me a stronger person, as I think it probably has for anyone on this forum. I see friends worrying about small things that are of no consequence and I feel I have a different perspective on life than they do oftentimes.

Having an opportunity to be on this forum and talk with people with similar issues and those who are going through greater difficulty than I has made me less bitter or angry about the situation. I also think I am more empathetic to people in general, especially those dealing with a chronic medical condition of any kind, be it E or something else.

 

[seagull]

I have seen people so desperate for work they lie about e.for me I don't know life without it so impossible to give any positive input