Taking drugs for the rest of my life?

[BlueCat]

:hugs:As an epilepologist recently told me, it's not a disease, it's a condition. That doesn't change. I've been on AEDs for 12 years, and have had 3 t/c's in that time, including the breakthrough sz last month. I've come to terms with being on the meds forever, and as long as it's helpful (hopefully from now on...), I'm ok with that. I'm one of the lucky ones who rarely have seizures and don't have any side effects from the meds, even though my dose seems pretty high. Good luck and I hope you find yourself with no sz's, meds or not.

 

[katzy]

:hugs:As an epilepologist recently told me, it's not a disease, it's a condition. That doesn't change. I've been on AEDs for 12 years, and have had 3 t/c's in that time, including the breakthrough sz last month. I've come to terms with being on the meds forever, and as long as it's helpful (hopefully from now on...), I'm ok with that. I'm one of the lucky ones who rarely have seizures and don't have any side effects from the meds, even though my dose seems pretty high. Good luck and I hope you find yourself with no sz's, meds or not.

I didn't know about breakthrough seizures! I haven't had any seizures while I was on Lamictal the first time or now. How many years did you go seizure free before your breakthrough seizure?

 

[masterjen]

Many people on medication have their seizures successfully controlled, while others may have poor control. Often certain seizure types (tending to be the partial seizures) are more difficult to control than some others (such as tonic-clonic seizures). This is by no means a hard and fast rule, as I'm sure you've gathered from reading around here, but it is an overall trend. Plus there is the factor that everyone responds differently to the various medications.

Sounds like you may be one of the many lucky ones who are successfully controlled, which is fantastic!