Terror feelings with Simple Partials

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SimplePartialGal said:
You know when someone comes from behind you in a joking manner and says "Boo" and catches you off guard? That feeing is also a way to decribe it.
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I think that's almost perfect! Mine isn't that jumpy fear of the first moment though, if you take that first second away it's exactly that idea. Thanks for finding the words!

also after (sometimes for hours) I feel the confusion is similar to when you spend the entire day continually wondering and worrying if you were supposed to do something. That weird nervous, almost guilty sick feeling.
 
SimplePartialGal said:
That feeling like a roller coaster is a good comparison. It is like going downhill on a big roller coaster. That feeling you get would stay through the entire seizure with me (along with confusion, deja vu, headaches etc). Here is another comparision. You know when someone comes from behind you in a joking manner and says "Boo" and catches you off guard? That feeing is also a way to decribe it.
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Yes. That's another good way to describe it. I often think my startle reflex is actually amplified because of this. My mom actually thinks it's funny to startle me even though I've told her I absolutely hate this feeling and that it reminds of seizures. I don't think she's trying to be mean or anything. Sometimes it just seems like people just don't get it.

But yeah. It's a lot like being suddenly startled. Only I'd say that feeling in my stomach is much worse when I'm going to have a seizure. Being startled only lasts a couple of seconds and it's gone as soon as I realize nothing is wrong.
 
Startled, that's the best word. The sensation doesn't turn off until the seizure is over. Isn't it awful? Isn't it impossible to explain to people? I am sorry your mom does that to you, sounds like she has no understanding what it is like.
 
SimplePartialGal said:
Panic attacks can be treated with behavioral therapy. These aren't panic attacks, no therapy would stop these.
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Yes! It is so frustrating. When I say I have fear and tingly fingers and nausea... I know that tingly fingers alone aren't related to seizures, and I know that fear alone isn't... It's like... I KNOW the difference. He especially started thinking maybe panic because I have some issues with anxiety, but it's never been so severe as to cause any types of "attacks." I might just be nervous, or only have that pit in stomach feeling, but I knew those were just me being nervous. It's like... I DO see a therapist and I DO see a psychiatrist, and it hasn't really changed much of anything in regards to those feelings of fear. Yeah, it's calmed down my anxiety/moods, but not the feelings of fear because those aren't related to my moods. Grrr
 
picklenose said:
But yeah. It's a lot like being suddenly startled. Only I'd say that feeling in my stomach is much worse when I'm going to have a seizure. Being startled only lasts a couple of seconds and it's gone as soon as I realize nothing is wrong.
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The stomach thing is a big indicator with me if it's paired with other things... I'll get that with deja vu... thankfully since I started on meds it has never progressed to a full T/C, but that same feeling is what preceded my other T/Cs, which is why my neurologist is frustrating me...
 
RunningGirl85 said:
The stomach thing is a big indicator with me if it's paired with other things... I'll get that with deja vu... thankfully since I started on meds it has never progressed to a full T/C, but that same feeling is what preceded my other T/Cs, which is why my neurologist is frustrating me...
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I'll tell you. I used to have great seizure control with meds too. And when I started having seizures again, I couldn't understand why. But I'll tell you one thing in my life that did change just before the seizures started again.

I never tried any illegal drugs in my life up to about early 2005 or so. Never did any drugs in school or anything like that. I decided to try pot in 2005 when I was in my early 30s. I smoked it regularly for a few months and then quit (out of fear of legal consequences if I were to be caught with it). As soon as I quit, that's when I started having seizures again despite the Depakote that had worked so well since I was in my teens.

So if you have good seizure control and you've never done any drugs, my advice would be don't do it if you're ever tempted to. I can't say for sure that's what caused it but I wish I'd never done it.
 
I don't know if it's a coincidence but my seizures started shortly after my pot use began in my teens. Have you guys found anything linking the two?
 
Katiered said:
I don't know if it's a coincidence but my seizures started shortly after my pot use began in my teens. Have you guys found anything linking the two?
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I don't know but I didn't think I had anything to lose since I'd never heard of pot actually causing people to have more seizures
 
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