The road ahead

[resaebiunne]

So I spoke with my edoc this morning. I've just successfully switched off of keppra which I was very nervous about. I'm now on 300mg of Topamax a day. My seizure levels remain more or less the same however (still 1-2 a day average). So where to go from there? Well there were two options: Boost the depakote or the topamax. I'm against boosting the depakote as we've already tried that and it made me gain so much weight. So that leaves the topamax. Doc said we'll only go so high though. He says there's no point in pushing it to the max like with the other drugs. This is because a) there's not really much point when I've had so little success with the other drugs, and b) I have "dopamax", the memory loss side effect.

This time he says there are no more drugs to try. Next step is the VNS. He hasn't mentioned the VNS in a long time (since early last year), but it seems we're getting closer to that point. My guess is we'll be there sometime next late next summer after fully ramping up the topamax.

 

[Nakamova]

Good to hear that the Keppra is out of your system successfully. I hope the boost in Topamax does the trick for you. Make sure you stay properly hydrated and get plenty of vitamin C and potassium-rich foods.

 

[Porkette]

Hi resaebiunne,

It sounds like you and I are in the same boat trying drug after drug and getting no place. As I mentioned before have your Dr. do a DNA test on you to see if you are drug resistant or if there's seizure med that will help you. I know when I was on Topamax it didn't help me at all but everyone is different. Have you thought about trying cbd oil I know since my Epileptologist told me to try it my seizures have reduced a lot. I wish you the best of luck and May God Bless You!

Sue