Endless
Even Keel
- Messages
- 4,466
- Reaction score
- 3
- Points
- 0
Hi, all.
I've been keeping a journal to try and sort out cause-and-effect relationships between environmental and internal factors, and my seizures. Tiredness or fatigue has been a tangled issue I'm having trouble figuring out.
Sometimes fatigue comes after my seizures, and I just want to sleep all day.
Almost always lack of sleep is a trigger and results in more frequent or worse seizures.
Yesterday I had an experience with fatigue that confused me - I don't think I had a seizure yesterday, but you never know because all day I had that "something's wrong" feeling that comes with my auras, and I was exhausted beyond description. I was so tired that I could feel it down in my bones. It felt like the exhaustion had hit my lungs and they didn't want to work making it very hard to breathe. I was unusually irritable, too. (And of course my family just saw me as the biggest grump ever, not pre-ictal!)
Then that night:
It's morning and I still don't feel right. The terror goes away when the seizure goes away, but it makes me shakey and fragile feeling for awhile afterwards. But I am no longer bone-numbingly exhausted. That is gone.
So can fatigue be an aura predicting seizures, as well? Or was the deep fatigue a seizure all on its own? Or maybe I had a seizure and didn't recognize it? (sometimes I don't because of all the years of training myself to try to ignore them and just keep going!)
The exhaustion wasn't due to a bad night's sleep the night before - I had slept great that night. Also, I'm ramping up on Lamictal, currently on a very low dose. Could that have something to do with it?
When does fatigue hit you?
I've been keeping a journal to try and sort out cause-and-effect relationships between environmental and internal factors, and my seizures. Tiredness or fatigue has been a tangled issue I'm having trouble figuring out.
Sometimes fatigue comes after my seizures, and I just want to sleep all day.
Almost always lack of sleep is a trigger and results in more frequent or worse seizures.
Yesterday I had an experience with fatigue that confused me - I don't think I had a seizure yesterday, but you never know because all day I had that "something's wrong" feeling that comes with my auras, and I was exhausted beyond description. I was so tired that I could feel it down in my bones. It felt like the exhaustion had hit my lungs and they didn't want to work making it very hard to breathe. I was unusually irritable, too. (And of course my family just saw me as the biggest grump ever, not pre-ictal!)
Then that night:
- In the evening I had one AIWS seizure (alice in wonderland syndrome - the tv appearing big then small then big then small)
- In the middle of the night between 2:00 a.m. and 4:00 a.m. I had 3 fear seizures. Ugh, a tough night.
It's morning and I still don't feel right. The terror goes away when the seizure goes away, but it makes me shakey and fragile feeling for awhile afterwards. But I am no longer bone-numbingly exhausted. That is gone.
So can fatigue be an aura predicting seizures, as well? Or was the deep fatigue a seizure all on its own? Or maybe I had a seizure and didn't recognize it? (sometimes I don't because of all the years of training myself to try to ignore them and just keep going!)
The exhaustion wasn't due to a bad night's sleep the night before - I had slept great that night. Also, I'm ramping up on Lamictal, currently on a very low dose. Could that have something to do with it?
When does fatigue hit you?
- Before (seizure trigger)?
- Before (aura/warning)?
- During?
- After?