They are talking about sending me home

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ACMommyX3

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I am not OK with this I have already had several seizures this morning and keep needed oxygen when I have a seizure is there anything I can do to get them to change there mind.

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Not to mention I got my breakfast this morning and ended up having a seizure before I could even eat. It was a 50 minute seizure....they keep getting longer what if I go status? Then what?

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What is their reason for wanting to send you home? Maybe find that out, to see where they are coming from with their decision.
 
ACMommyX3

Considering what you are going through I would refuse to go home until like masterjen said you find out why they want to send you home. They cannot send you home like that and when you are afraid, you need answers.
 
ACMommyX3 said:
Not to mention I got my breakfast this morning and ended up having a seizure before I could even eat. It was a 50 minute seizure....they keep getting longer what if I go status? Then what?

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A 50 min seizure is status, since the majority of seizures only last 2-3 min. Sometimes a seizure longer than 5 min is considered status and sometimes longer than 10 min; I'm not sure of the latest definition. What medication did they give you to stop the seizure? If they do actually send you home, ask if it is necessary to have some medication on hand that your husband can give you should a seizure continue longer than 5 min.
 
I wonder if the insurance company is playing a role in hospital decision to send home.

Anything above 5 minutes or cluster is considered status and can be life threatening. I would not agree to go home in the current situation.

What did you eat in breakfast? I doubt that the hospital breakfast is packed with nutrition.
 
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I didn't get to eat the seizure hit before I could I have had several seizures since than

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ACMommyX3

You need to be firm and find out exactly what is going on. They cannot send you home unless you are able to go home.
 
I don't even remember getting up today and I have cuts that I don't know where there from and the middle of my chest hurts, but they said we're gonna see about tomorrow so there not going to send me home today.

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I had 19 seizures last night from 7 until whenever after having 9 in the ER and the 7 I had at home

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I have had status and you definitely had status.

If they do not want to keep you at the hospital, ask to be sent to another hospital.

Ask for Ativan or Lorazepam, those are for status. Remember your life is at stake. Go to another hospital.
 
Yea but the neuro here told them not to give me anything. He got upset they had me on oxygen.

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Yea he seemed really nice when I met him then he was arguing with the nurses in front of me last night. Then told me to tell my nurses he was OK...like wtf

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You definitely need a new neurologist. Is there more than one where you are? I lived in Iowa, and where I was there was none when we moved there, and only one for a long time, then 2 when they built the hospitals bigger. How far are you from another city where there might be a different neurologist?
 
I think there may be a second one here. Otherwise the closest is an hour away

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Hmm - just curious. Are the doctors thinking your seizures are psychogenic? I'm not saying they are or are not, but when seizures are (or are suspected to be) psychogenic doctors can take a more hard-lined and unsympathetic approach.
 
That seems to be what he thinks, but my ICU nurses and the ER doctor I had argued about that. He hasn't seen the EEG yet.

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The EEG may help if it shows activity consistent with seizures/epilepsy, but a normal EEG does not rule out epilepsy. If psychogenic seizures are suspected, your neurologist may want to have you speak to a psychologist or psychiatrist to get his/her opinion (just wanted to let you know so if it does happen it doesn't come across as so much of a shock). I went this route when I was seeing a general neurologist: I never lost consciousness during a seizure and a 30 min EEG was normal, so the conclusion was PNES. Little did I know then, and I figured the neurologist must be right. Fortunately I was referred by a doctor from another specialty to an epileptology clinic at a nearby hospital because he did not believe the opinion of this first neurologist. Since then I've had more in-depth diagnostic testing, with a diagnosis of epilepsy (among other neurological problems, unfortunately) confirmed.
 
This will be my third neuro. And I was diagnosed with epilepsy in 2012. So it is all very confusing. I lose consciousness plus my heart rate goes up and oxygen goes down

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