TLE and Auditory Processing Difficulties

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We are having issues with my 1st grader. She has TLE, her meds are working great. She was diagnosed with APD in November. When I was doing some research, I saw that people was TLE are prone to having more processing difficulties.

Does anyone have similar issues?
 
Hi RockerMama'

Glad you found this forum.

I'm 60 years old --I've had TLE all my life, and I too have trouble taking in information and saying what I want to say.

I hope this helps you and your child.

There are some great moms in this forum, look around into all the other sites.

I have found answers to questions in this forum, it has been a big help to me.
 
Greetings, RockerMama!

Welcome to CWE! This is an awesome site & it has also been a big help to me. I've had TLE for 21 years. Oh yes, my mom's major complaint about me is, "You don't seem to understand what I am telling you. LISTEN TO ME!!!" We've had countless bickerings because, as my mom says, "You don't understand me."
 
My daughter, 3 years old, who has epilepsy.
When she had her hearing test done 1 year ago, she did not respond well to most of the testing even though doctors could not find any physical problem with he hearing. Since then she had been coming for hearing tests every 3 months and each time the result is different.
By reading this thread, it now seems that the possible reason for that could be due to her not processing the sounds.
Also in general she follows instructions with great difficulty.
 
I'm thinking I might have something similiar. Sensory processing disorder. It's not just for hearing but all five senses. I think mine are overloaded when I start getting aura's. I've become extremely light sensitive, even the slightest bit of light puts me to sleep and my skin burns right up. I'm sensitive to touch, I hate rain on my face the most. Taste is stronger with me. That's only a few. I've been looking it up actually. I posted the SPD and Seizures post, it's only a speculatory paper but I really am trying to figure things out.

The light sensitivity is most disabling. I sleep all day because of the sun, when I go out I'm preactically blind, particulary to certain colors. Even florescent lights bother me a lot. I wish it would stop! I heard they have special glasses but I can't AFFORD them.

oops, sorry for the rant. It's still a pretty fresh thing for me too.
 
Rebecca took special classes in school beginning in 1st grade, because she was tested with auditory processing difficulties. She also began speech therapy at the age of 3. Her seizures did not begin until the age of 14

We noticed auditory processing improvement during and after neurofeedback, which she did at about the age of 16.

She now has not had a seizure in over a year, and even though traditional classes are not her strong suit, she is moving along in college and passing classes. She is also working part time, and practicing her figure skating daily, so her mind is in overdrive.

She has a heterotopia in the right frontal lobe. One Epileptologist said it was the cause of her seizures, and another very reputable Epileptologist team said it was not. So go figure...
 
My daughter never had speech, and was an early talker. But she asked "What?" all the time. She passed all her hearing tests, but I knew something was off. When she started struggling, her Dr and teacher said ADHD. But that didn't seem it to me. My 2 year old was in speech, special ed, and OT for his delays, and the OT that evaluated him mentioned APD to me. That was like a year ago, but all of a sudden it popped in my head, and I looked it up. My daughter fit almost all of it. We are lucky enough to live near a specialist in APD, who designed the testing himself. Her case is extreme, and it was surprising how well she has already coped.

In fact, her coping ability seems to have counted against her. She has a 504 plan, and they doubted her test results because she is doing average in school. With as bad as she tested, especially with background noise/overlapping voices, you would think she would be doing much worse. But what we now know is APD comes across as inattentiveness. And it seems like people don't get that inattentiveness is also a symptom of APD.

Her APD was diagnosed in November 2011, so it is still pretty new. In January was when she told us about her "episodes" when she sees, hears, feels unusual things. Same as her APD, she thought it was typical, and that everyone experienced those things. We have noticed her memory has improved a LOT with the medicine. Like A LOT! She still has some issues with memory because of her APD, but I think a big part of it was the seizures.

Sorry about the novel, lol.
 
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