Tonic Clonics - eyes open, or closed?

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You know, I have no idea. An ex bf and his family we're the only ones to ever see me, and we aren't in touch. Ugh, I still can't bring myself to watch a seizure video, it sounds so scary and I really don't want to know how I look during one. I'm always completely unconscious, I know that much.
 
When my partner described it to my neuro he said "they flicker and roll to the back of her head" hes never filmed me and I never ever want him too.

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It freaks my husband out when I seize, he hates them. I don't really care for them either, but they scare him.

my bf too, first time he seen me t.c. i woke up to him holding me and crying. that was AWFUL. majority of the time just day to day if I make a weird sound or he hears something fall on the floor (something not even that loud like a bottle of shampoo or something from the fridge) he comes running, heart pounding out of his chest. and when i have partials he can tell it's happening even when he has his back to me. i guess it's happened so many times he can just feel the strangeness. we both hate them so so much :(
 
yep, when I stretch, one of those full body stretches...I make noise. Kind of like a moan. It's completely involuntary. If he's not in the room he worries.
 
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