Hi all, I thought I would ask your opinions on my seizures because I've never gotten a clear answer from my neurologist as to why I have them and what might be causing them and also just...I'd like to hear your thoughts.
I'll be 18 in a month. I'm a female and I'm on 200 mg of Zonegran. I also have had migraines since I was very young.
I had my first seizure when I was in the shower when I was 13. It was a grand mal; I passed out and my eyes rolled back in my head and I had a migraine afterward; the whole shebang.
Since then I had one more in the shower-then I went on the Zonegran. Then one in the hospital when I was taken there after that seizure. Then I had one while I was sleeping (only evidence of this was I woke up fatigued with a very bitten tongue).
I sometimes have what I call "tremors" even though I'm on medication. Basically they'll happen when I'm in the shower sometimes or when I'm tired in the morning or when I'm trying to fall asleep at night-typically anytime my eyes are closed and I am in a state of drowsiness. My hands and arms will jerk and shake randomly. It's not like a seizure, but it is annoying and worrying. If I open my eyes at all when this is going on, they automatically stop.
I have been told by my neurologist to avoid caffeine and chocolate because they could cause migraines, and he thinks my migraines cause my seizures ( I think because he doesn't know what else could cause them. My EEG and MRI and CAT scans have all come back fine.) I try to avoid them as much as possible, but until now I have had the occasional glass of caffeinated tea or piece of chocolate.
This morning, I woke up early and checked my alarm. I tried to go back to sleep but as soon as I closed my eyes, I started having tremors. They were worse than they usually are. I don't remember much about it except me vaguely thinking that this was bad and I needed to open my eyes so they would stop.
My mom said I was making a lot of noise and talking loudly. She came to see what I was talking about and said I was conscious, and not having a grand mal seizure, but incoherent. Then she said when I did start speaking clearly I kept repeating that I needed help.
I had a migraine this morning afterward, and don't remember much about it as usual, but otherwise I feel fine.
I guess all this is to say-what do you guys think these tremors are? And why do you think I have them? Any thoughts would be appreciated.
I'll be 18 in a month. I'm a female and I'm on 200 mg of Zonegran. I also have had migraines since I was very young.
I had my first seizure when I was in the shower when I was 13. It was a grand mal; I passed out and my eyes rolled back in my head and I had a migraine afterward; the whole shebang.
Since then I had one more in the shower-then I went on the Zonegran. Then one in the hospital when I was taken there after that seizure. Then I had one while I was sleeping (only evidence of this was I woke up fatigued with a very bitten tongue).
I sometimes have what I call "tremors" even though I'm on medication. Basically they'll happen when I'm in the shower sometimes or when I'm tired in the morning or when I'm trying to fall asleep at night-typically anytime my eyes are closed and I am in a state of drowsiness. My hands and arms will jerk and shake randomly. It's not like a seizure, but it is annoying and worrying. If I open my eyes at all when this is going on, they automatically stop.
I have been told by my neurologist to avoid caffeine and chocolate because they could cause migraines, and he thinks my migraines cause my seizures ( I think because he doesn't know what else could cause them. My EEG and MRI and CAT scans have all come back fine.) I try to avoid them as much as possible, but until now I have had the occasional glass of caffeinated tea or piece of chocolate.
This morning, I woke up early and checked my alarm. I tried to go back to sleep but as soon as I closed my eyes, I started having tremors. They were worse than they usually are. I don't remember much about it except me vaguely thinking that this was bad and I needed to open my eyes so they would stop.
My mom said I was making a lot of noise and talking loudly. She came to see what I was talking about and said I was conscious, and not having a grand mal seizure, but incoherent. Then she said when I did start speaking clearly I kept repeating that I needed help.
I had a migraine this morning afterward, and don't remember much about it as usual, but otherwise I feel fine.
I guess all this is to say-what do you guys think these tremors are? And why do you think I have them? Any thoughts would be appreciated.