Undiagnosed simple partial seizures. Please advise.

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Lin

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Hi, I'm new and have been lurking on and off for a while. I don't know where else to turn to and I'd love some advice. Apologies in advance for what might turn into a long post.

My partner of 7 years has forever had what we both strongly suspect are simple partial seizures. Over the years they have changed a bit, but mainly they come with some twitching (face, hand), nausea and strong stomach pains, voices (that has mostly receded), and sudden attacks of panic and/or anger. His memory gets sometimes distorted, and he usually is sleepy and tired afterwards.

Symptoms aside, we have good reasons to be suspicious: 5 of his 6 siblings have diagnosed epilepsy, and his mother is also suspected to have some form of seizures (undiagnosed). One of his siblings has tonic clonic seizures, the others only partials of various forms and intensity.

Two years back he was diagnosed with high cholesterol - he's only 27. That prompted a complete turn around in his diet and exercise regime: he started daily exercising, quit drinking, followed a healthy diet and, what I think might be also important, started taking fish oil daily. He also started therapy, to help control the stress, which did make a difference. The seizures seem to be much less frequent since then, and also much less severe. Basically we wouldn't know they're there if we didn't know about them.

My problem is, he refuses to go to a doctor with these symptoms. He claims we already know all the doctors are going to tell us and he doesn't believe his "negligible" seizures require medicating. I on the other hand worry. I see some of his siblings' seizures changing for the worse over the years and affecting their quality of life, and I wonder if we may be inviting future trouble by pretending this is nothing. I would like us to start a family at some point, and ignoring this problem feels irresponsible. (And in a very quiet voice, let me add, I do worry about passing this on to our children. It feels bad admitting that, but there goes.)

I don't know more than the internet tells me on the subject, so I'd love to hear what people with personal experience and more knowledge have to say. Mainly I worry about whether the continued seizures may be causing damage to his brain and whether leaving them untreated could make things worse. Am I worrying too much?

Thanks in advance, it already helps to share.
 
You've come to a great place, you'll be able to get the right help here, just don't give up ok?
 
Encourage him to at least see his primary care doctor for another opinion. I have had partial seizures for the past 3 1/2 years but was only dx'ed in October. Thankfully they never progressed to something more serious but it is my understanding that they can. Every seizure you have programs your brain to have more seizures more easily from what I have read.
 
welcome lin, you definately came to the right place :)

My partner of 7 years has forever had what we both strongly suspect are simple partial seizures. Over the years they have changed a bit, but mainly they come with some twitching (face, hand), nausea and strong stomach pains, voices (that has mostly receded), and sudden attacks of panic and/or anger. His memory gets sometimes distorted, and he usually is sleepy and tired afterwards.

the majority of what you've listed here are classic symptoms of a simple partial (the anger is more rare but can happen). there are many distortions with s.p.s, and tired is common afterwards as well b/c tho it is considered a small seizure they can be very taxing on the brain.

My problem is, he refuses to go to a doctor with these symptoms. He claims we already know all the doctors are going to tell us and he doesn't believe his "negligible" seizures require medicating. I on the other hand worry. I see some of his siblings' seizures changing for the worse over the years and affecting their quality of life, and I wonder if we may be inviting future trouble by pretending this is nothing. I would like us to start a family at some point, and ignoring this problem feels irresponsible. (And in a very quiet voice, let me add, I do worry about passing this on to our children. It feels bad admitting that, but there goes.)

you're very right. if it's something suspected (esp. as so many people in his immediate family have seizures/epilepsy) it is vital to see a specialist to either confirm or rule out an epilepsy diagnosis. if it is e, getting on medication is just as vital, as more often than not those that opt against meds, or take themselves off them, regret it down the road, even if it's years later. epilepsy is incurable, and smaller seizures turning into larger more life-threatening ones can happen at any time. medication and proper testing with a neurologist is key. i know this both through personal experience as well as much research.

Mainly I worry about whether the continued seizures may be causing damage to his brain and whether leaving them untreated could make things worse. Am I worrying too much?

all seizures, regardless of what type or how often, cause damage. it may take years for damage to show, or it could be evident right away. i'm assuming from what you've said he's never had testing, however it's one of those things... if a person doesn't rule it out it can't be said that there isn't something wrong. if they are simple partials and that's all he's having right now then his seizures are 'focal seizures,' meaning the activity is in one area of the brain. not one iota are you worrying too much.
hugs girl. epilepsy is not something to take chances with, including getting diagnosed. best of luck, and talk to us any time, there is always someone who has been in your shoes, or your husbands and can help.
 
everything qtown says is right on the money. The long-term effects of ignoring simple partial seizures can be overwhelming. There is too much to go into here, but please pm me if you have more questions. I've had simple partial seizures for more than 30 years now, and have gained a pretty thorough understanding of them from a layman's point of view. They are definitely not something to be minimized or ignored.
 
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