mooselips
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Hi all,
Hopefully you all kind of know the travailing story of my husband who was diagnosed with Temporal Lobe Epilepsy last November, and prescribed 100mg. Dilantin 3 X a day.
Up til then, he had 2 seizures. Well, he had another April 6th, while we were in Florida. They, (the family Dr. in Ohio) readjusted his Dilantin and he ended up on 500mg. a day. Since that increase, he has been extremely confused, somewhat agitated, and off balance. His level on April 29th was 22.7
He was to have another level this coming Tuesday.
Well, we are back home in Ohio now, and he had his first visit with his NEW Neurologist at the Cleveland Clinic. He is slowly over a period of 12 weeks being weaned from Dilantin, and starting Lamictal, and when finished weaning, will be on 200mg. Lamictal twice a day.
Our new Neurologist was very kind, understanding, and compassionate. Way far better than what we have dealt with before. He said he dislikes meds where you have to worry about a level all the time, he says it becomes a compulsion of worry.
Okay, couple of questions here.
The Neurologist reviewed my hubbys MRI and MRA of his brain, and saw a spot in the Medial Temporal Lobe, the hippocampus, which seems there is a small "hole" there, which the Dr. said could be from my husbands original injury of 1970.
He also said if this medication doesn't work, surgery will be a consideration.
Anybody on Lamictal?
Is it controlling your seizures well?
Side effects?
Any ideas regarding the "hole"?
Thank you all,
Gary's wife...
Hopefully you all kind of know the travailing story of my husband who was diagnosed with Temporal Lobe Epilepsy last November, and prescribed 100mg. Dilantin 3 X a day.
Up til then, he had 2 seizures. Well, he had another April 6th, while we were in Florida. They, (the family Dr. in Ohio) readjusted his Dilantin and he ended up on 500mg. a day. Since that increase, he has been extremely confused, somewhat agitated, and off balance. His level on April 29th was 22.7
He was to have another level this coming Tuesday.
Well, we are back home in Ohio now, and he had his first visit with his NEW Neurologist at the Cleveland Clinic. He is slowly over a period of 12 weeks being weaned from Dilantin, and starting Lamictal, and when finished weaning, will be on 200mg. Lamictal twice a day.
Our new Neurologist was very kind, understanding, and compassionate. Way far better than what we have dealt with before. He said he dislikes meds where you have to worry about a level all the time, he says it becomes a compulsion of worry.
Okay, couple of questions here.
The Neurologist reviewed my hubbys MRI and MRA of his brain, and saw a spot in the Medial Temporal Lobe, the hippocampus, which seems there is a small "hole" there, which the Dr. said could be from my husbands original injury of 1970.
He also said if this medication doesn't work, surgery will be a consideration.
Anybody on Lamictal?
Is it controlling your seizures well?
Side effects?
Any ideas regarding the "hole"?
Thank you all,
Gary's wife...