momofevan
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not sure who is all familiar with evan's story..but to make it short he was diagnosed with epilepsy in december 2009(he is 2 years old)..we are now on 5 meds. zonegran, klonopin, keppra, lamictal, and the most recent dilantin..the dilantin is only suppose to be used temprarily until we get his lamictal tapered up. He has still been having seizures on a daily basis..although when they loaded him through i.v. with dilantin he had no seizures since friday until this evening.
We have also been urged to seriously consider the VNS..(vagus nerve stimulation)..anyone here have this done?? or thier child have this done??
they do want us to take him back in to get a spinal tap done.they want to test something called a glucose transporter to see if his brain is getting enough sugar..
We have also been urged to seriously consider the VNS..(vagus nerve stimulation)..anyone here have this done?? or thier child have this done??
they do want us to take him back in to get a spinal tap done.they want to test something called a glucose transporter to see if his brain is getting enough sugar..