momofevan
New
- Messages
- 29
- Reaction score
- 0
- Points
- 0
:woot:
Just wanted to give you all an update on Evan. We started the ketogenic diet on August 2. He is doing fabulous!!!!! He went 3 weeks without any seizures. We decided to wean keppra because my husband and I could no longer tolerate the behavior issues the med was causing. During the second week of the wean, Evan had 3 seizures, but it has now been almost 3 weeks since we have seen his last seizure!!!!
We just had his first keto clinic on tuesday and all his labs look great. The only thing at this point that we are really concerned with is his speech, as he does have a bit of a speech delay (expressivly). We are now going to start him in speech therapy and hopefully with time we can correct his speech.
Starting this diet has been the best decision we have made for him..it has not been an "easy ride", but it is so worth every ounce of effort we have put forth!!!!
Just wanted to give you all an update on Evan. We started the ketogenic diet on August 2. He is doing fabulous!!!!! He went 3 weeks without any seizures. We decided to wean keppra because my husband and I could no longer tolerate the behavior issues the med was causing. During the second week of the wean, Evan had 3 seizures, but it has now been almost 3 weeks since we have seen his last seizure!!!!
We just had his first keto clinic on tuesday and all his labs look great. The only thing at this point that we are really concerned with is his speech, as he does have a bit of a speech delay (expressivly). We are now going to start him in speech therapy and hopefully with time we can correct his speech.
Starting this diet has been the best decision we have made for him..it has not been an "easy ride", but it is so worth every ounce of effort we have put forth!!!!