CJR
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Hi all,
Sorry I haven't been around in a while. We had a vacation (very enjoyable) and a lot of appointments (not enjoyable at all).
Shan has been doing well. She has very few unprovoked seizures. Last month she only had 3! Yeah us! The Meds (Depakote ER and Carnitor) seem to be having a good effect on the unprovoked seizures. However, they are doing nothing for the photosensitivity induced seizures. She had 10 of those last month. A majority where caused by lightning flashes. Luckily these seizures don't include falling, etc. Instead, I call them Deceive Seizures because she looks fine but her comprehension is non-exsistent. These are the seizures that cause her to wander into traffic, be unable to tie her shoes, or gives her a glazed over "high" look. Her language skills become very slow and words are often mixed up.
The Neuro has prescribed blue tinted sunglasses for Shan to wear 24/7 in the hopes that she will have less light induced seizures. I called our insurance company to see if I needed Authorization and was told no they'd be fully covered under medical not eyecare. I called a second time to double check...same answer. The eye doctor wanted to ensure that they would pay in full so they insisted on not dying the lenses until the claim was paid. I called to check on the claim and told it was being process under full medical. I called again and was told that they had indeed paid the claim in full. I excitedly called the eye doctor to tell them. They looked into it and called back saying that the company had paid $45 towards the frames, the entire cost of the lenses, and had completely denied the tinting. I called the insurance company again...OOOPS it was processed under eyecare. Now, they have to re-process the claim again. That will be another additional 2 weeks from now.
I've been fighting for these glasses since July 7th. I hate insurance companies. They also suggested that I forward documentation from the neuro's office saying that these are medically necessary so that there won't be further delay waiting for that documentation. Talk about a run around! I'm glad I don't work because this is a full time job in itself.
On an upsetting note, The Neurologist feels that Shan is a refractory case and that we've gotten the best control over her seizures that we can without medicating her into oblivion. Ofcourse, this saddens me.
Well, that's our update. Thanks so much for all the insight and support you've all given us. I hope that I'll be able to check in a bit more often...if I can ever get off the phone with the insurance jerks...LOL.
Sorry I haven't been around in a while. We had a vacation (very enjoyable) and a lot of appointments (not enjoyable at all).
Shan has been doing well. She has very few unprovoked seizures. Last month she only had 3! Yeah us! The Meds (Depakote ER and Carnitor) seem to be having a good effect on the unprovoked seizures. However, they are doing nothing for the photosensitivity induced seizures. She had 10 of those last month. A majority where caused by lightning flashes. Luckily these seizures don't include falling, etc. Instead, I call them Deceive Seizures because she looks fine but her comprehension is non-exsistent. These are the seizures that cause her to wander into traffic, be unable to tie her shoes, or gives her a glazed over "high" look. Her language skills become very slow and words are often mixed up.
The Neuro has prescribed blue tinted sunglasses for Shan to wear 24/7 in the hopes that she will have less light induced seizures. I called our insurance company to see if I needed Authorization and was told no they'd be fully covered under medical not eyecare. I called a second time to double check...same answer. The eye doctor wanted to ensure that they would pay in full so they insisted on not dying the lenses until the claim was paid. I called to check on the claim and told it was being process under full medical. I called again and was told that they had indeed paid the claim in full. I excitedly called the eye doctor to tell them. They looked into it and called back saying that the company had paid $45 towards the frames, the entire cost of the lenses, and had completely denied the tinting. I called the insurance company again...OOOPS it was processed under eyecare. Now, they have to re-process the claim again. That will be another additional 2 weeks from now.
I've been fighting for these glasses since July 7th. I hate insurance companies. They also suggested that I forward documentation from the neuro's office saying that these are medically necessary so that there won't be further delay waiting for that documentation. Talk about a run around! I'm glad I don't work because this is a full time job in itself.
On an upsetting note, The Neurologist feels that Shan is a refractory case and that we've gotten the best control over her seizures that we can without medicating her into oblivion. Ofcourse, this saddens me.
Well, that's our update. Thanks so much for all the insight and support you've all given us. I hope that I'll be able to check in a bit more often...if I can ever get off the phone with the insurance jerks...LOL.
I hope you and Shan are doing alright, and that the glasses help. I've heard that the blue lenses can actually cut seizure activity by up to 50%. One can hope.
