Hi, just wanted to give you an update on my son. He had his first seizure episode on Sept. 2 at home and another seizure at the hospital. They ran loads of tests, kept him overnight and scheduled an appointment with a pediatric neurologist.
We had our appointment. The neurologist said that our son's EEG was definitely abnormal. He said the area of the brain was the right front temporal lobe. My son asked about video games since on the advice of our pediatrician we had seriously curtailed his playing time and the neurologist said he was not photosensitive. I then asked what activity during the test caused the abnormal brain activity and he said it was present all through the test and did not seem to be affected by different activities. He said all physical findings were normal and there was no underlying physical cause.
His said it was our option but his recommendation was not to medicate at this time. If our son has another seizure we are to call 911 and take him to the hospital for evaluation and the hospital would call the neurologist on call from the practice and we would start medication then.
He said our son may never have another seizure but his odds now were 60% he would and 40% he would not have another one. If he goes six months without a seizure his odds go to 70% he won't and 30% he will and if he makes it a year he will probably never have another one. We opted not to medicate at this time.
If we make six months with no seizure we will do another EEG and re-evaluate at that time. He told us good nutrition and regular sleep sechedule was very important and we have started giving him a multi-vitamin and placed him on a strict bedtime.
The diagnosis on the paperwork said: Seizures, partial with secondary generalization, abormal EEG.
I feel like I don't know much more than I did before and like we are still walking on egg shells. I am still nervous and jump at every odd sound or movement he makes.
You guys know much more than I do and have visited neurologists. What do you think? Is it possible for someone to have a "definitely abnormal" EEG and not have any more seizures?
Lori
We had our appointment. The neurologist said that our son's EEG was definitely abnormal. He said the area of the brain was the right front temporal lobe. My son asked about video games since on the advice of our pediatrician we had seriously curtailed his playing time and the neurologist said he was not photosensitive. I then asked what activity during the test caused the abnormal brain activity and he said it was present all through the test and did not seem to be affected by different activities. He said all physical findings were normal and there was no underlying physical cause.
His said it was our option but his recommendation was not to medicate at this time. If our son has another seizure we are to call 911 and take him to the hospital for evaluation and the hospital would call the neurologist on call from the practice and we would start medication then.
He said our son may never have another seizure but his odds now were 60% he would and 40% he would not have another one. If he goes six months without a seizure his odds go to 70% he won't and 30% he will and if he makes it a year he will probably never have another one. We opted not to medicate at this time.
If we make six months with no seizure we will do another EEG and re-evaluate at that time. He told us good nutrition and regular sleep sechedule was very important and we have started giving him a multi-vitamin and placed him on a strict bedtime.
The diagnosis on the paperwork said: Seizures, partial with secondary generalization, abormal EEG.
I feel like I don't know much more than I did before and like we are still walking on egg shells. I am still nervous and jump at every odd sound or movement he makes.
You guys know much more than I do and have visited neurologists. What do you think? Is it possible for someone to have a "definitely abnormal" EEG and not have any more seizures?
Lori
