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WHY WHY WHY??????????????? I had 2 simple partial today and I know I shouldn't even complain compared to what other ppl have I shouldn't say a thing. I see my neuro next month and I feel like what's the use?
upset fed up and sz's are coming again
- Thread starter Belinda5000
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I am so sorry for you Belinda. I know (a bit) how you must feel. My son had to grand mals today one big one at the daycare and a smaller one just half an hour ago while he was sleeping.. Why, why, why? He was doing so well last weeks. 
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Belinda5000
Why is a good question, simple because you are a good person who can handle whatever is thrown at you, yes its not easy as you know but you fight and your not going down without a fight and I will be one cheering you on. Of course you can complain, you have every reason and right. Its hard to keep fighting this thing and its not easy but then if its handed to you its just not the same as you earning it, and you have earned it enough times now so do not give up. Hopefully your neuro can help you.
Why is a good question, simple because you are a good person who can handle whatever is thrown at you, yes its not easy as you know but you fight and your not going down without a fight and I will be one cheering you on. Of course you can complain, you have every reason and right. Its hard to keep fighting this thing and its not easy but then if its handed to you its just not the same as you earning it, and you have earned it enough times now so do not give up. Hopefully your neuro can help you.
zoe147
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I'm so sorry Belinda. I wish they could figure out a way to make them stop completely! One of the reasons I feel so blessed to have found CWE is because it is a community of caring people sharing the day to day realities of living with E. I am so glad you are sharing about today's szs and my gosh, you have every right to not be happy about it. Please take such good care until you see your neuro.
Sending out hugs to you and to Dutch mom for her son's szs today, too.
:hugs:
Sending out hugs to you and to Dutch mom for her son's szs today, too.
:hugs:
"...compared to what other ppl have I shouldn't say a thing."
Don't feel that just because you aren't having a bunch of t/c's each day means you aren't allowed to feel down about what's going on with you. We're all here to help each other, no matter where on the spectrum of severity lies your epilepsy.
I can relate. The journey to controlling epilepsy is one of the most frustrating things I can imagine, and I am yet to be near an end. I think the important thing is to just continue. I look at it like how I dealt with my previous bouts of depression: I do not feel good today, and everything is wrong. Yet I will forge on, because tomorrow might be the day that everything is better. After all, it eventually has to get better, right?
Don't feel that just because you aren't having a bunch of t/c's each day means you aren't allowed to feel down about what's going on with you. We're all here to help each other, no matter where on the spectrum of severity lies your epilepsy.
I can relate. The journey to controlling epilepsy is one of the most frustrating things I can imagine, and I am yet to be near an end. I think the important thing is to just continue. I look at it like how I dealt with my previous bouts of depression: I do not feel good today, and everything is wrong. Yet I will forge on, because tomorrow might be the day that everything is better. After all, it eventually has to get better, right?
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I feel like in more than 51 years of having seizures and never even have gone 6 months seizures free that I've never even had a life. I'm told by ppl I don't know about things because I don't drive or work and I'm lucky I don't pay taxes.
Tell me since when do taxes stop because you don't work?
I'm just as intelligent as anyone and more so with some. I just want my seizures to stop; I've taken drugs since I was 2 years old for my seizures .
Tell me since when do taxes stop because you don't work?
I'm just as intelligent as anyone and more so with some. I just want my seizures to stop; I've taken drugs since I was 2 years old for my seizures .
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Don't complain!!!!!!! Having a seizure is still having a seizure!!!!!
I know there are people who have one or more seizures a day but I actually feel worse (no offence to anyone) for the people who will be seizure free for a year or more then BAM get hit by one!
On average I have 5 seizure a month. There have been times when I'll go 2 and a half weeks with no seizures and start to get really excited saying to myself "Wow I'm not going to have any seizures this month!" Then next thing I know here they come in the next two weeks!