Pricilla
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I am home from my week long imprisonment! That was very difficult to be hooked up that long, but proved well worth the hassle!
During my stay I had no abnormal activity, no spells- nothing. In a way I was hoping for quick activity so I could go home earlier, but it turns out I had nothing and thats great- here's why....
-I was misdiagnosed by my first neurologist!
All week I had no activity, spells- nothing. I was a little bummed at first thinking coming off the medicine would produce something you know?
By Thursday I was getting suspicious since there was nothing going on at all.
I had been sleep deprived and had multiple light and hyperventilating tests daily. Nothing was working, so while sitting there being bored I went over all the facts.
I asked my dr. to look over the first eeg I had done to see when the abnormal activity was occurring (during the lights or breathing)
Friday he came back and he said the spikes the first neurologist saw could have been easily misinterpreted if you aren't experienced enough. What was happening at that point was my body system was so low due to my thyroid that I was really sleepy all the time (to the point i could literally close my eyes and lay my head back and take a nap) so the spikes that he saw were probably me just being sleepy. He said those spikes were the ones between sleep and being awake.
So that first neurologist thought they were absence seizures and put me on the lamictal.
As my tsh numbers with the synthroid improved, my lamictal dose increased so naturally my seizures stopped.
I am really glad I asked for a second opinion or I would still be unable to drive and be on meds I really didn't need in the first place. Hypothyroidism was the culprit of my seizures, but it took all these test to figure it out.
I highly recommend getting a second opinion if you feel you need one. Turned out questioning my dr was the best thing i could have done. I was a little mad at him for not putting two and two together since he knew i had a high tsh number, but I found out he really specializes in nerves, so he really just wasn't the guy to go to.
I am just putting this out here so it may turn up in the results on the internet so it may help someone else down the road. My endocrinologist said she definitely didn't think they were connected, so I had the neurologist and the endocrinologist both thinking it was epilepsy and it never was.
During my stay I had no abnormal activity, no spells- nothing. In a way I was hoping for quick activity so I could go home earlier, but it turns out I had nothing and thats great- here's why....
-I was misdiagnosed by my first neurologist!
All week I had no activity, spells- nothing. I was a little bummed at first thinking coming off the medicine would produce something you know?
By Thursday I was getting suspicious since there was nothing going on at all.
I had been sleep deprived and had multiple light and hyperventilating tests daily. Nothing was working, so while sitting there being bored I went over all the facts.
I asked my dr. to look over the first eeg I had done to see when the abnormal activity was occurring (during the lights or breathing)
Friday he came back and he said the spikes the first neurologist saw could have been easily misinterpreted if you aren't experienced enough. What was happening at that point was my body system was so low due to my thyroid that I was really sleepy all the time (to the point i could literally close my eyes and lay my head back and take a nap) so the spikes that he saw were probably me just being sleepy. He said those spikes were the ones between sleep and being awake.
So that first neurologist thought they were absence seizures and put me on the lamictal.
As my tsh numbers with the synthroid improved, my lamictal dose increased so naturally my seizures stopped.
I am really glad I asked for a second opinion or I would still be unable to drive and be on meds I really didn't need in the first place. Hypothyroidism was the culprit of my seizures, but it took all these test to figure it out.
I highly recommend getting a second opinion if you feel you need one. Turned out questioning my dr was the best thing i could have done. I was a little mad at him for not putting two and two together since he knew i had a high tsh number, but I found out he really specializes in nerves, so he really just wasn't the guy to go to.
I am just putting this out here so it may turn up in the results on the internet so it may help someone else down the road. My endocrinologist said she definitely didn't think they were connected, so I had the neurologist and the endocrinologist both thinking it was epilepsy and it never was.