Vent about medication...

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I agree with you deeds. last friday I spoke with the drs nurse. She was the one that told me that my neuro thinks the seizures are not from the generic, but they are 'anxiety attacks". How in the hell can a neurologist who put me on brand name keppra xr clearly see how well it was controlling the seizures, then know that the insurance when he sent over the prescription, send me the generic... think that the seizures that occured days after, was anxiety? When it was clearly obvious that the seizures were from the generic. It frustrates me to know that there are drs like that out there. I got so frustrated with the nurse. All she could tell me was that she was just relaying the information from what the dr told her to tell me. It will be two weeks tomorrow, that I had the break through seizures. Ive been seizure free for one week now. No more auras, no more seizures. so it took a good 6-7 days of being back on the name brand keppra xr to start to feel like myself again, after being on the generic for two weeks. But of course they dont know what its like to have a seizure. How it affects us. I wish they knew what it was we have to go through. It just makes me angry thinking about it.
 
Kristin, I want to cry when I read things like your latest adventure> YIKES.
I think there must be some medical professionals who know the score. I really like my neurologist at NYU but the Canadian docs think I just have psychiatric issues. It is hard to advocate for yourself in a postictal haze.
Keep Strong!
 
I agree Deeds! Its so frustrating when you get a dr who thinks they know it all about seizures. This neuro of mine only has 7 years of experience, and due to the dr who he was under prior, he gets alot of his information from him. This dr who he was with, I had prior, and he was so screwed up, he increased my keppra from 3000mgs a day to 4000mgs a day! Talk about a walking seizure zombie I became! Horriable dr!

I wish there were more drs out there who understand our needs.
 
Nebraska.....haha thats all I got. I swear we share the same battle wound Kristin. Maybe its just this place!
 
this appualing..
is it possible just say to dr nurse and pharmist they must take full responsibility for anything that happens and if they think is it psychiatric put it in writing will they be prepared say that in court if you have driving accident and as they putting you through un-neccerssary stress you seiziour threshhold will be unstable.
 
this sounds crazy! drs never listen! they way u have to order scrips sounds crazy, im kinda glad i live in uk where we just ring up dr hands u out a scrip a day later and u get ur drug!
 
Out of the blue, I just got a notice from my health insurance saying that starting next year, with my particular plan:

1. I don't have to use the mail order service for my meds, I can use the local pharmacy if I want.
2. They will cover brand name in addition to the generics.

It's almost as if they were aware how problematic those restrictions can be for people with epilepsy.

Of course it probably means there's going to be a big rate increase...
 
Nakamova said:
Out of the blue, I just got a notice from my health insurance saying that starting next year, with my particular plan:

1. I don't have to use the mail order service for my meds, I can use the local pharmacy if I want.
2. They will cover brand name in addition to the generics.
Click to expand...
That's good :).

Nakamova said:
Of course it probably means there's going to be a big rate increase...
Click to expand...
Do they increase the rates or price on a regular basis (eg every year)?
 
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I know there are some people who have to take the name brand for their meds because they have reactions to the generic brand.

I was wondering if someone has always taken a generic Anti Epilepsy Med then they suddenly start taking the brand name, is it possible that the persons system has gotten used to the generic that they could have side effects or reaction if they did try the brand name?
 
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