batman
Been around the epilepsy block a few times
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For all of the years I have been seeing videos on YouTube I didn't know about the "Flag" option. Once I found out about this in December last year (2009), I registered onto YouTube and got busy flagging some videos pertaining to epilepsy. For the first two weeks, it looked like some of the videos I flagged were being removed from YouTube. Just not all of them. One of the videos I flagged was removed, but it was later uploaded again. Seeing this, along with some of the videos I flagged not being removed; I realized this wasn't doing any good.
Stigma, prejudice and discrimination is never going to end. Even for those of us who are having to deal with seizures and epilepsy. So instead of trying to fight primarily the stigma, let's just dodge "the negative" and focus our attention on "the positive".
At this moment, the most recently uploaded video onto YouTube that pertains to epilepsy and seizures, dated January 20, 2010, is titled "WARNING! THIS VIDEO MAY CAUSE VIOLENT PROJECTILE VOMITING AND EPILEPTIC SEIZURES!" This is a 31 second video of an animated hot dog with the background colors rapidly changing. The message under the user name bowlingforcheese is "WATCH IF YOU DARE!" I'm definitely willing to flagged this one video, but there's no guarantee this video is going to be removed. And this is just one of those videos intended to insult people with epilepsy.
bowlingforcheese is only one of the members on YouTube who's throwing stigma at people trying to cope with epilepsy. My idea is instead of trying to "catch the stigma and throw it back", just "dodge the stigma" and focus your attention on getting the information about seizures and epilepsy everyone needs to see and understand. I'm talking about everyone, no matter if they do or do not have epilepsy.
Which would you consider as being most important... A) Keeping people from uploading stigmatizing videos about epilepsy onto YouTube; . . . Or . . . B) Making people aware of what can happen with sticking something inside a person's mouth when they're having a seizure?
By typing in just the word "epilepsy" (without the quotation marks) in the YouTube search box, and by making a few choices within the additional "Search Options" on YouTube, the following weblink is what shows up, in order to have up-to-the-minute search results. http://www.youtube.com/results?uploaded=d&search_query=epilepsy&search_type=videos&suggested_categories=26%2C22%2C1%2C10%2C25&uni=3&search_sort=video_date_uploaded
This was how I found out about the video of a little baby girl who had a seizure on Christmas day last year (2009). I considered that video as being a wonderful source for learning the correct way to proving proper first aid to a child having a tonic clonic (grand mal) seizure. Here's a weblink for that video.
Stigma, prejudice and discrimination is never going to end. Even for those of us who are having to deal with seizures and epilepsy. So instead of trying to fight primarily the stigma, let's just dodge "the negative" and focus our attention on "the positive".
At this moment, the most recently uploaded video onto YouTube that pertains to epilepsy and seizures, dated January 20, 2010, is titled "WARNING! THIS VIDEO MAY CAUSE VIOLENT PROJECTILE VOMITING AND EPILEPTIC SEIZURES!" This is a 31 second video of an animated hot dog with the background colors rapidly changing. The message under the user name bowlingforcheese is "WATCH IF YOU DARE!" I'm definitely willing to flagged this one video, but there's no guarantee this video is going to be removed. And this is just one of those videos intended to insult people with epilepsy.
bowlingforcheese is only one of the members on YouTube who's throwing stigma at people trying to cope with epilepsy. My idea is instead of trying to "catch the stigma and throw it back", just "dodge the stigma" and focus your attention on getting the information about seizures and epilepsy everyone needs to see and understand. I'm talking about everyone, no matter if they do or do not have epilepsy.
Which would you consider as being most important... A) Keeping people from uploading stigmatizing videos about epilepsy onto YouTube; . . . Or . . . B) Making people aware of what can happen with sticking something inside a person's mouth when they're having a seizure?
By typing in just the word "epilepsy" (without the quotation marks) in the YouTube search box, and by making a few choices within the additional "Search Options" on YouTube, the following weblink is what shows up, in order to have up-to-the-minute search results. http://www.youtube.com/results?uploaded=d&search_query=epilepsy&search_type=videos&suggested_categories=26%2C22%2C1%2C10%2C25&uni=3&search_sort=video_date_uploaded
This was how I found out about the video of a little baby girl who had a seizure on Christmas day last year (2009). I considered that video as being a wonderful source for learning the correct way to proving proper first aid to a child having a tonic clonic (grand mal) seizure. Here's a weblink for that video.
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