Hello - i am new here. My daughter Jess, who is almost 4 now, has been having every kind of seizure, including A Typical Infantile Spasms, since she was 3 months old. Her MRI's, CT Scans etc are all normal - Her EEG's on the other hand are not. Her seizures do not originate from any one area. On top of her seizures she has an undiagnosed neurodevelopmental disorder. We have been through a few neurologists and numerous drugs etc etc. We were directed to Dr.Kao, who is awesome, last November who, after going over Jessies history approached us about the VAGUL NERVE STIMULATOR -VNS for short. After a lot of research my husband and I decided it would definately be worth it, and thank God, it was. She had surgery in December and after healing from surgery (about 2-3 weeks) we went back and they turned the stimulator on. To actually have some control and be able to do something when she seized - helped us so much, but much more importantly - it has so changed Jess for the better. I won't go into VNS detail, you can look it up on the net, but after so many meds and treatments have failed - ITS WORKING!! We didn't see a lot of results immediately ( which is normal), but w the VNS her seizures were less severe and happening less and less. Currently she is 33 days seizure free and everything about her is improving - from her physical to her mental. It is so woderful to have our happy girl back again and to see daily improvement. I haven't seen any reference to the VNS so wanted to share with you all. It may not be for everyone but if you or a loved one has epilepsy etc. please, please look into it - it has changed Jessica'
s and our lives and i am so thankful we finally found a neurologist who doesn't accept what is and fights to make it better. God bless !
s and our lives and i am so thankful we finally found a neurologist who doesn't accept what is and fights to make it better. God bless !