Crystal11
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Hello everyone- I was able to finally see my neurologist last month. As a part of our initial interview/visit- I had to describe my seizures, my medications, how things are going and any other medical problems that I am having if any.
I was diagnosed with migraines and my diagnosis of complex partial seizures/epilepsy is still the same. I've had complex partial seizures my whole life- or since age 6.
One thing I pointed out to him was that I had drop seizures if I reduced my medication down- mainly Tegretol XR by 200mg. Now I'm going to be getting off of it and I'm afraid of having more of those. I live upstairs and its a fear for me now.
Another thing I pointed out, and I wanted to know if any other people have this, was right sided weakness after a complex partial seizure in my right arm.
I told him that after I'm more aware- I notice my right arm from my shoulder to my finger tips feels weak, almost sick feeling. I can do things with it- but i just want to hold it still and wait for a while for the odd feeling to go away.
It can last from 5min to 20min depending.
He told me that because its on my right side that things happen on, my seizures are coming from the left side of my brain.
I just never really heard of someone getting weakness after a seizure on one side and not the other.
Just curious if others had a similar feeling after wards.
I also told him that before a CP- I sometimes am told that I try to do something to stop it. As if I had some type of control over it. The last time I did this- I was listening to my XM radio through my hearing aids. I took the remote control and was changing the channels over and over again as if that would make my seizure not progress. This did not work.
Anyone else have this feeling of trying to avoid the seizure or stop it before it
progesses further?
Everyone take care,
Crystal
I was diagnosed with migraines and my diagnosis of complex partial seizures/epilepsy is still the same. I've had complex partial seizures my whole life- or since age 6.
One thing I pointed out to him was that I had drop seizures if I reduced my medication down- mainly Tegretol XR by 200mg. Now I'm going to be getting off of it and I'm afraid of having more of those. I live upstairs and its a fear for me now.
Another thing I pointed out, and I wanted to know if any other people have this, was right sided weakness after a complex partial seizure in my right arm.
I told him that after I'm more aware- I notice my right arm from my shoulder to my finger tips feels weak, almost sick feeling. I can do things with it- but i just want to hold it still and wait for a while for the odd feeling to go away.
It can last from 5min to 20min depending.
He told me that because its on my right side that things happen on, my seizures are coming from the left side of my brain.
I just never really heard of someone getting weakness after a seizure on one side and not the other.
Just curious if others had a similar feeling after wards.
I also told him that before a CP- I sometimes am told that I try to do something to stop it. As if I had some type of control over it. The last time I did this- I was listening to my XM radio through my hearing aids. I took the remote control and was changing the channels over and over again as if that would make my seizure not progress. This did not work.
Anyone else have this feeling of trying to avoid the seizure or stop it before it
progesses further?
Everyone take care,
Crystal