jemsister
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I've never known how to answer the question, "How are you doing?" Lately I've been having a ton of issues, for the last several months, with medication switches, lots of breakthrough seizures, sodium depletion, a couple of instances of needing IV saline to bring up my sodium, etc. etc.
So when people ask me how I'm doing within this context, I never know what to say. Things are volatile, yes, but when my sodium is up, and I'm not having a seizure in that moment, then I am more or less fine--in that moment. But at the same time, with having all this crap going on causing more breakthroughs and tons of meds and whatnot, then I can't really tell them I'm better either. I've come to loath this question for this very reason. There doesn't seem to be a simple answer. I've settled on saying, "So-so," or, "Hangin' in there..."
I guess this is the problem with having an invisible condition. You look fine, you act fine, so what's your problem? I've often had people tell me, when I tell them about the partial seizures I have, "Oh, that's not so bad."
onder:
So when people ask me how I'm doing within this context, I never know what to say. Things are volatile, yes, but when my sodium is up, and I'm not having a seizure in that moment, then I am more or less fine--in that moment. But at the same time, with having all this crap going on causing more breakthroughs and tons of meds and whatnot, then I can't really tell them I'm better either. I've come to loath this question for this very reason. There doesn't seem to be a simple answer. I've settled on saying, "So-so," or, "Hangin' in there..."

