My 13 year old daughter had a seizure on June 7th of this year while serving at church. She had a seizure last year in May while serving church as well. She has served many times between without any problems. She has not been diagnosed with anything yet. She is very healthy and happy. The first time it happened (last year-while serving) she was kneeling and fell over, she hit her head hard on a radiator, she shook and her eyes rolled back in her head. I was in the back of church so I learned all this from two women that were up front. She didn't remember anything and was very tired and confused after. We went to the ER, they didn't do much, they were more concerned about hitting her head. She had a few issues after that at school and while camping, she said they felt like she wasn't in her body and de ja vu like feelings.
Fast forward to this year, she was standing this time at church and she fell again. Her brother was with her and said she looked like one of those balloon men, her legs went wobbly and she looked like she got hit by a car, she fell down and her eyes never closed, and she shook again her arms were straighy above her head. She again didn't know what happened and was confused and tired. There was a doctor and nurse there and they said it was definitely a seizure. We took her to the ER again and they ran a lot of tests (CT-blood-EKG) all came back normal. We then continued with an EEG and MRI that also came back normal. We saw the neurologist and he said they can only find a cause in about 10% of epilepsy. He said to watch her and see how it goes. We went to church this morning (she is not serving anymore) but she got sick while we were sitting there. She felt tired and not really there. We left and after about 30 minutes laying down she was fine again.
Is she really having seizures or could this just be anxiety? My brother has severe epilepsy (but he has scar tissue on his brain) She did get a very bad headache right before both of her passing out seizures. That didn't happen today. Should I have more tests done or just keep watching. It sounds awful but those tests are all very expensive and they are not showing anything anyway!!! Any advise or related stories? Thanks for listening
Fast forward to this year, she was standing this time at church and she fell again. Her brother was with her and said she looked like one of those balloon men, her legs went wobbly and she looked like she got hit by a car, she fell down and her eyes never closed, and she shook again her arms were straighy above her head. She again didn't know what happened and was confused and tired. There was a doctor and nurse there and they said it was definitely a seizure. We took her to the ER again and they ran a lot of tests (CT-blood-EKG) all came back normal. We then continued with an EEG and MRI that also came back normal. We saw the neurologist and he said they can only find a cause in about 10% of epilepsy. He said to watch her and see how it goes. We went to church this morning (she is not serving anymore) but she got sick while we were sitting there. She felt tired and not really there. We left and after about 30 minutes laying down she was fine again.
Is she really having seizures or could this just be anxiety? My brother has severe epilepsy (but he has scar tissue on his brain) She did get a very bad headache right before both of her passing out seizures. That didn't happen today. Should I have more tests done or just keep watching. It sounds awful but those tests are all very expensive and they are not showing anything anyway!!! Any advise or related stories? Thanks for listening