what the strangest think a Neur. said or ask you?
- Thread starter jyearta
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I hope I'm guessing RIGHT, if so good for you!!!!!
Autumn Breeze
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My neurologist once told me it was a good idea to take a folic acid supplement, since if I got pregnant that would help protect against the side effects from the anti-seizure meds. I told her that I wasn't sleeping with anyone at the time, so that wasn't really a concern of mine, and then she said: "But what if you got raped and got pregnant?"
I'm not kidding. She really said this. It took me a while to pull my jaw up off the floor.
I'm not kidding. She really said this. It took me a while to pull my jaw up off the floor.
PFunk
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Hi J
Look up hypergraphia (which applies to writing and drawing). There are certain trait that some people with temporal lobe epilepsy display. This is probably what the neuro was referring to. Also take a look at Geschwind Syndrome, it's pretty interesting but nothing to dwell on. We are all amazing people
Has anyone been asked to draw a clock. I got that on my first visit. Apparently its a pretty good test on how your brain operates.
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Autumn Breeze
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Brilliant, that did remind me that the nurse that took my vitals in the ER said "Oh, did you bite your tongue?" because there was blood on my lips.
hhhhmmmm Maaaaybe...
I have read that people with E are more prone to be creative than others, so there is a positive.
It wasn't a neurologist but a really patronising a&e doctor that told me that "I could think my way out of epilepsy"....seriously, seriously?!!! My GP's jaw dropped when I told him.
It wasn't a neurologist but a really patronising a&e doctor that told me that "I could think my way out of epilepsy"....seriously, seriously?!!! My GP's jaw dropped when I told him.
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OMG. I would have had the same reaction! Some people just don't think before they speak!
You guys crack me up. On my script for a Lamictal blood level, the doctor V-codes, "long-term use of anticoagulants"...another good one...I had neurosurgery in 2010, and the some odd $30,000 claim got billed (under my insurance last week) to the wrong facility, hahahaha!!! :roflmao:
***I also had 'your EEG is normal', but it looks like you had 'anoxic brain damage' (no kidding, my APGAR was like 3!) and maybe it could've been those multiple times you hit your head as a child?! Really? So now, I have diagnoses, "long-term use of anticoagulants", generalized convulsive epilepsy, psychogenic non-epileptic seizures (God knows how they arrived at that one?), anoxic brain damage, and major depression...and a partridge in a pear tree...:wave:
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For me it would have to be when my neuro (before I fired him) asked after a grand mal how I didn't know I didn't just faint?
That had been the harshest seizure I'd had injury-wise (was trying to get out of the shower), I had bruises on my back and shoulder and a massive goose egg on my head, my back was scraped... you get the drift. I told him if I had fainted I wouldn't have made contact with every wall and surface on that end of the bathroom (one towel rack specifically my body would have never touched if I simply fell down). But even after seeing the bruises and hearing a thorough description of how out of it I was for a long time after, he still suggested it was faint and I would benefit from seeing a psychiatrist.
That was the last time I was in his office, after having him for over 7 years. It was time to get a real E doctor, an Epileptologist, so that's what I did.
That had been the harshest seizure I'd had injury-wise (was trying to get out of the shower), I had bruises on my back and shoulder and a massive goose egg on my head, my back was scraped... you get the drift. I told him if I had fainted I wouldn't have made contact with every wall and surface on that end of the bathroom (one towel rack specifically my body would have never touched if I simply fell down). But even after seeing the bruises and hearing a thorough description of how out of it I was for a long time after, he still suggested it was faint and I would benefit from seeing a psychiatrist.
That was the last time I was in his office, after having him for over 7 years. It was time to get a real E doctor, an Epileptologist, so that's what I did.
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It's not strange really but more like wondering if doctors talk with each other cause everytime I see him, he asks if I've had any seizures. If I have one, I'm going to the ER, at least if I become unconscious. I said if I did, I didn't know it and he said most of the time you don't have a seizure without knowing it. At least in the sense of something happening, not necessarily automatically knowing it's a seizure.
I had forgotten this one, this was Neur. no. ?
--1st visit--I wasn't in his office 5 min., he said I needed surgery.
I got up and walked out.
For all I know surgery could be what I need in order to not be on THESE meds. and not have seizures. None of the other Neur. have ever mentioned surgery.
--1st visit--I wasn't in his office 5 min., he said I needed surgery.
I got up and walked out.
For all I know surgery could be what I need in order to not be on THESE meds. and not have seizures. None of the other Neur. have ever mentioned surgery.
I was told that people with epilepsy are either creative or great with words. I can't draw but can write you a decent poem in 10 mins about anything and did do this in one of my neuro appointments just to prove his point. He had tears in his eyes reading my poem about epilepsy though. It's the easiest way I can find to express myself
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Saw a new neurologist in Sept at the same hospital where I had surgery 11 years ago (old neuro and surgeon are no longer there). He asks me to tell him what's going on... so I did, and when I said "..the seizures came back" He cut me off and said "I'm not going to congratulate you" with a straight face. Already don't know how to take him.
He looks over my history and prior surgical notes, asks me what meds I'm on. When I told him how I felt on the Keppra, said he'd change it up and put me on Vimpat. When I asked him if we'd be spending a lot of time experimenting with meds like we did in my first round of epilepsy, he said "No, we're going after the money, we'll cut more out." Again, with a totally straight face. I had to pick my dad's jaw up off the floor.
He's a very well known neurologist in this area, and I'm sure he's brilliant, but certainly lacks any bedside manner.
He looks over my history and prior surgical notes, asks me what meds I'm on. When I told him how I felt on the Keppra, said he'd change it up and put me on Vimpat. When I asked him if we'd be spending a lot of time experimenting with meds like we did in my first round of epilepsy, he said "No, we're going after the money, we'll cut more out." Again, with a totally straight face. I had to pick my dad's jaw up off the floor.
He's a very well known neurologist in this area, and I'm sure he's brilliant, but certainly lacks any bedside manner.
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