what the strangest think a Neur. said or ask you?

[MaeDae]

when ttrying to describe an aura/or one of my "episodes" I told neuro dr that i get this unplugged feeling....he replied "So how do you get plugged up again?". where was my quick sharp tongue when I needed it?

 

[kathya410]

Many years ago a nerologist wanted to give me an eeg so he asked me to stop taking my meds ( cold turkey ) so that he could be assured of recording seizure activity onthe eeg. Before I got to the eeg day I was in neurointensive care suffering from status epilepticus. My memory has been miserable since then. I guess I should have sued the doctor but all I wanted was to get far away.

 

[Havok]

My neuro goes, "When was the last time you had a seizure?"

I said, "June"

And he says, "Oh, so you had a seizure in june?"

I wanted to say "Nope, I just made up a random time to throw you off your game."
lol

 

[gonyere]

When I got pregnant w/ my first son in 06' and saw my neuro for the first time in december (~6 months pregnant) I was told I was an idiot for getting pregnant (twasnt on purpose!!) and an idiot for weening myself of phenobarb (but I was *FINE* - then and for the next 3+ yrs!!)... I've never seen him again. I did call him a few months ago to get his opinion on what I should do, and got a recommendation to another neuro who I've now seen once, and is much better than the last two (he's a pediatric nuero, and since I'm now 28 won't see me anymore...)

 

[Nakamova]

Some neurologists get so angry if you make a decision without consulting them -- even if that decision is carefully thought out. When I decided not to go any higher on my Lamictal dose (my neuro wanted me at at least 300mg/day, and I stopped at 250mg), my neurologist was furious. She kept insisting that I was making a mistake, that I would lose my license, etc. I told her that I felt confident in my choice, and was prepared to deal with the consequences if my choice was wrong. She kept saying "When you have seizure..." and I kept correcting her: "If I have seizure..." She couldn't support me enough to even wish me well with my decision.

To make a long story longer, I had no problems at 250mgs, and have since tapered down to 150mg/day, and have been seizure-free for over 4 years. Oh, and I've switched neurologists.

 

[Hand of Blood]

mine at the start told me it was panic attacks instead of sezures!

 

[MaeDae]

when ttrying to describe an aura/or one of my "episodes" I told neuro dr that i get this unplugged feeling....he replied "So how do you get plugged up again?". where was my quick sharp tongue when I needed it?

I could also tell he was laughing at me. He covered up his mouth with one hand and asked me to describe again what happens. I noticed he was squirming in his chair. He also yelled at me for not being able to see his fingers when he asked how many he was holding up....to be honest I didnt see his fingers and I got scared because I couldn't see them and I almost burst into tears....I waited til he left the room first. I just talked to God, and asked for a few favors.....

 

[jyearta]

One my Neur. didn't believe me when I told that vitamin D (over the counter) caused seizures, when I stopped the Vit. the seizures stopped.

I took him a copy of article my Pharm. gave m

He got so mad, he was never the same after that.

SOOO I went to Neur. no.768632239

 

[MaeDae]

One my Neur. didn't believe me when I told that vitamin D (over the counter) caused seizures, when I stopped the Vit. the seizures stopped.

I took him a copy of article my Pharm. gave m

He got so mad, he was never the same after that.

SOOO I went to Neur. no.768632239

lol
I got a long way to go, im still on neuro 1

 

[Hand of Blood]

thats another things docs and neros HATE u telling them information on differnt things u researched, ever since i did that i was ignored more than i was!

 

[cazzy]

your pregnant

 

[Havok]

thats another things docs and neros HATE u telling them information on differnt things u researched, ever since i did that i was ignored more than i was!

I took a scientific paper to my GP once about one of my health issues. He got so excited. He was like a kid on christmas morning lol.

 

[Cez]

One once said to me (without consulting my records AT ALL) "I'm not sure you have epilepsy" what the......mind blown....by the way ive had 3 conclusive eegs including video and a diagnosis from more than 3 others, also the seizures MAKE IT PRETTY CLEAR, asked me to start reducing my meds 3 weeks later in hospital with status, mind you he was a moron, current neuro is a pretty decent guy

 

[valeriedl]

At one visit I was seeing the physicians ass, oh I'm sorry physicians assistant. I told her that I was having more seizures than usual and wondered if I needed to have my meds changed some how.

She told me that there was nothing wrong with the meds, I was just having more seizures because I wasn't taking them. My mom and husband were both there with me and told her that I always take my meds and take them on time, I've got an alarm on my phone that goes off on med time.

Well we got into a huge argument because "I wasn't taking my meds". Needless to say when I scheduled my next visit I was yelling at the neuro's receptionist telling her that I was never going to see the asst again.

Sort of got back at the neuro's asst on that visit though. I've got skin problems, usually very bad dry skin. When I was going through my bag taking my meds out for her to see I saw at the bottom of the bag that there was the bottle of lotion that the dermatologist had given me. I said "Here's my Scabies cream that I've been looking for!" (not knowing that scabies was an actual thing, just a word that I'd made up) You should have seen the look on her face as she slowly backed away from me! :roflmao: