When did you first meet someone else with epilepsy?

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i meet people all the time, or heave people tell me horror stories about their loved ones. I have rescued a few people while they were post-tical and hit their head. it is amazing how people freak out. of course it only lead me to be curious how people act when i am unconscious.
 
I wandered through life until I was mid 20's having complex partials, telling no one, freaked out by them, but as long as they went away for months and years at a time I forgot about them. In that time I met two people with epilepsy and knew them well, never knowing I had it too. I just met a guy at work who has it too.
 
When I was 2 years old, my sister was diagnosed with epilepsy. My father had epilepsy, too.

About 8 years ago, I met a person with epilepsy but she moved to Oregon before we could really become good friends.
 
Never have. Nobody in my family to my knowledge has ever had it. I got it from having a stroke and it started not long after.
 
One of my first cousins used to have febrile seizures when she was a baby. She no longer has them but my other cousin started having seizures when she got pregnant. She still has them.
 
My Occupational Health Therapist-how ironic lol. We developed a good bond and would have plenty of good chats. I still wish he worked at my place, I could really do with his advice.
 
As a teenager I sort of knew that my great uncle (who I remember), and a cousin (who I had never met) had epilepsy when they were young. The first time I saw a seizure was when I was in fourth grade, although I didn't know what it was. The girl probably had epilepsy, but I didn't know that.

A teenage son of one of my college professors had epilepsy, and I met him. He didn't want to talk about it.

However, the first time I REALLY met someone with epilepsy and knew it was about ten years ago. I was around 30. My uncle was getting remarried in his 50s. His fiance's sister had epilepsy, and she was at the wedding. We spoke about it for about 5 minutes.

A year or two after that I applied for a job, told my potential boss, and found out HE had epilepsy. I liked working for him.

On my way back from the Mayo Clinic earlier this month I saw a guy in the train station with a big scar on the side of his head. I asked him about it. He had a subdural hematoma and developed epilepsy. It wasn't really until I spoke with him that I felt I had an honest to goodness conversation with someone with active epilepsy.

Often when I tell people they say, "My so and so has epilepsy". Almost everyone knows someone, or of someone who has epilepsy. Yet so few know anything about it, even people with epilepsy.
 
Actually, my dad may have had some sort of epilepsy (undiagnosed). He used to get jamais vu, as a result of a stroke, which I never knew about until just before he died.
 
In 1990 when I was 13 I was having some issues with a teacher at High school who knew I had a history of epilepsy. The teacher basically told me because I had epilepsy as a baby when I was an adult I wouldn't be able to do regular things people do eg have kids, drive, work. Eventually my level coordinator heard what the teacher was doing & she was reprimanded.

Long story short my Mum confided in 1 of our closest family friends about what was going on. This friend said to my Mum that she could speak to me as she also had epilepsy.
This lady & her family had been family friends since about 1980 & she had never mentioned her epilepsy until I was having the issues at school.

The friend sat me down & told me that epilepsy doesn't stop you from leading a fairly normal life. At the time she had epilepsy for about 20 years but her seizures were under control so she was able to live a fairly normal life.
 
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There must be something about Barnes and Noble. I had one there the other day. I think it was overload from trying to decide which ones I wanted.
 
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