Where to find good information about simple partial seizures?

[momof3boys]

Im trying to find some good websites explaining in details about simple partial seizures. Since my drs appointment today, Im wanting to find some information about what Im dealing with.

The numbness, tingling sensation Ive been having, my dr tells me is not associated with seizures. The head turning to my right, the nausas feeling in my stomach, the sadness I get before the seizure begins, and the stiffening of the right side, (arm and leg) with the jerking movements. My heart rate speeds up, and feels like its going to pop out of my chest! During all of this, Im still consious. As the seizure goes on, the numbness intensifies really strongly and goes up the left side of my body to my face area where the roof of my mouth goes completely numb. I can hear people during all of this happening, but at times I cant reply back because of how intense the seizure gets.

All of this lasts between 1-2 minutes.

I just want to find a good website that I can print out to show my dr that Im not trying to cause problems, just proove to him that Im not a nut case!

 

[epileric]

I would suggest you find it in a text book.

People can find a website that says anything on the net. I think if you really want your neurologist to take you seriously you'd need to find a biology or medical text. Of course then the problem (as it would also be with using the net) is that he might think you found it first & are trying to repeat what you already read.

 

[momof3boys]

I just want to point out what Im dealing with. I feel like Im repeating myself constantly to him and he keeps ignoring me. If he put me on any new medication, and I had side effects, it was side effects that he didnt think was from the medication, and then going back and fourth, telling him how much I couldnt stand it, but kept holding on til I couldnt no more. Then finding out the results from another dr, and he still doesnt believe it.

I was very dissappointed that he didnt at least take five minutes out of his time today to step in the room and ask how things were going. We were there for over two hours and all we saw was the PA and the caseworker. Its like he was trying to hide from us.

Ive found tons of information that matches the symptoms of simple partial seizures, that I have. Its just getting him to see where Im coming from. He is going based off of what he see is most common in patients and doesnt take into consideration that not everyone will respond to medications the same, or have seizures the same. Its just very difficult to get all the facts straight with him.

 

[epileric]

I do know how frustrating that is.

personally I've found that those types tend to waste my time because nothing ever gets accomplished (sound familiar?). I would highly recommend finding a new neuro.

 

[momof3boys]

Ive searched around and cant find any other neurologist that specializes in Epilepsy that our insurance will cover. Were in Nebraska and our insurance covers any neurologist in the "In- Network" area. Meaning, it has to be in Nebraska in order for the insurance to cover the costs. They have neuros here in town, but like they state to me, they would need me to have big tests done that consists of going back to the UNMC (University of Nebraska Medical Center) to get tests done there. That leads me back to the same Neurologist group of drs Im with now.

I told my husband today that it sucks we cant look into the other Epilepsy Clinics in other states. Our insurance wouldnt cover any of those.

 

[Cint]

Im trying to find some good websites explaining in details about simple partial seizures. Since my drs appointment today, Im wanting to find some information about what Im dealing with.

The numbness, tingling sensation Ive been having, my dr tells me is not associated with seizures. The head turning to my right, the nausas feeling in my stomach, the sadness I get before the seizure begins, and the stiffening of the right side, (arm and leg) with the jerking movements. My heart rate speeds up, and feels like its going to pop out of my chest! During all of this, Im still consious. As the seizure goes on, the numbness intensifies really strongly and goes up the left side of my body to my face area where the roof of my mouth goes completely numb. I can hear people during all of this happening, but at times I cant reply back because of how intense the seizure gets.

All of this lasts between 1-2 minutes.

I just want to find a good website that I can print out to show my dr that Im not trying to cause problems, just proove to him that Im not a nut case!

Here is a good website that describes your symptoms http://www.epilepsy.com/Epilepsy/seizure_simplepartial:

What are they like?

They are remarkably different from person to person, depending on the part of the brain where they begin. The one thing they all have in common is that the person remains alert and can remember what happens. Here are a couple of experiences:

"It is a pressure that starts in my stomach, then rises to my chest and throat. When it reaches my chest, I smell an unpleasant odor of something burnt. At the same time I feel anxious."

(sound familiar?)

 

[momof3boys]

Here is a good website that describes your symptoms http://www.epilepsy.com/Epilepsy/seizure_simplepartial:

Thank you, i will look into that!

(sound familiar?)

The uneasy feeling in my stomach, feeling like Im going to be nauses is what Ive experienced, which leads to a sad feeling that over comes me. I remember in the hospital times I started to cry before the jerking would start because I just felt so sad. The numbness or tingling feeling would get worse as the seizure would start.

Now the more I read with the tingling feeling, I see more of jacksonian seizures, or focal seizures.

Jacksonian seizures are initiated with abnormal electrical activity within the primary motor cortex. They are unique in that they travel through the primary motor cortex in succession, affecting the corresponding muscles, often beginning with the fingers. This is felt as a tingling sensation. It then affects the hand and moves on to more proximal areas. Symptoms often associated with a Jacksonian seizure are sudden head and eye movements, tingling, numbness, smacking of the lips, and sudden muscle contractions. Most of the time any one of these actions can be seen as normal movements, without being associated with the seizure occurring[citation needed]. They occur at no particular moment and last only briefly. Additional Information:- They can also start at the feet, same tingling (pins and needles), there is cramping of the foot muscles which, due to the signals from the brain, causes great pain.

Jacksonian seizures are extremely varied and may involve, for example, apparently purposeful movements such as turning the head, eye movements, smacking the lips, mouth movements, drooling, rhythmic muscle contractions in a part of the body, abnormal numbness, tingling, and a crawling sensation over the skin. Jacksonian seizures are a form of epilepsy.

Everything I put in Bold is what I experience during the seizure, along with my heart beating fast, and the sad feeling.

 

[Nakamova]

Here's a link from the NIH. Maybe your neurologist has heard of the NIH.
http://www.nlm.nih.gov/medlineplus/ency/article/000697.htm

 

[momof3boys]

Here's a link from the NIH. Maybe your neurologist has heard of the NIH.
http://www.nlm.nih.gov/medlineplus/ency/article/000697.htm

Thanks!

That lists alot of my symptoms! I will have to print that off!
Heck who knows if he's heard of them! :roflmao: