Wonder how many I've had

[valeriedl]

I try to keep a very good seizure diary with how many and how much information about the seizure I know. Since I've got a RNS the neuro can tell me how many I've actually had. I might think I've had three a month but it's really been ten , hopefully not that many though. A lot of them are happening in my sleep and I don't know that I've had them unless something major happens during it.

I've got an appointment on Friday, hope it's not too many.

 

[Sabbo]

I also keep a diary/record of my seizures. It's easy to record the simple partial seizures--I feel them come on, and I'm aware (partially) of stuff around me. The complex partial seizures, though, are a different story. Unless I do something to myself, notice some type of time lag, or there are witnesses, I don't even know that/when one has occurred. For example, my son & I were going to my mother's house recently, & I suddenly noticed that we were in the community center parking lot. My son said I was having a seizure, so he pulled in there to wait until I was out of it.
That's with the huge dose AEDs I take daily--500mg Zonisamide & 300mg Xcopri. My neuro wanted to raise Xcopri 50mg/month--insurance was requiring ME to pay nearly $700 for a 1-month supply. I said NO THANK YOU--I'll put up with the breakthroughs