Wonder if this is epilepsy.

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notime

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I thought the battle was pretty much over with at least with epilepsy. As far as I am aware, generalized seizures have stopped since August of 2014. Well, I seem to have strange spells.

I haven't told my doctor about this. I am going to take a few notes for a few weeks before I make another appointment. I was told before that it could be juvenile myclonic epilepsy. It's mostly when I wake up. I feel like I'm dizzy, then I run into something (by mistake not seizures) and a brief blackout for a second or so and weak. I have confusion for a second but I'm aware of it. Even then, I don't remember it clearly. I am going to hold off on telling my doctor, and see if it continues. It seems to happen right after I wake up within 30 minutes. I only fell to floor once, but that's because I had a stool in my way and I tripped on it.

Any idea if this sounds like myclonic seizures? I have primary generalized epilepsy. I'm aware of it happening. I just feel odd and dizzy. I did a blood pressure test and it was 128 over 84, and blood sugar was 104. I don't know what else it can be. I'm holding off on telling my doctor since I don't want to change my medicine yet since I have memory problems enough with it. I'm holding off hoping it'll go away.

My sleeping pattern always changes. I may go from 2am to 10pm or 2pm to 9pm. That's my fault. Perhaps a lot of it is from depression as well that might be triggering it.
 
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What Is This??????

notime,
Many times when a person who has E has strange feelings like yours, it is actually being caused by light seizures. When a person feels an 'aura' prior to having a seizure, that aura is actually a small, weak seizure. This could be what is happening with you. This is only a possibility so you need to discuss this with your doctor to find out for sure!

ACsHuman
 
A myoclonic seizure is when the body - generally in the arm and shoulder area - make a rapid jerk. The person is generally alert, thinks clearly and remembers the event.
 
@acshuman yeah, I am thinking it's perhaps myclonic seizures. He mentioned it before when I said I got lightheaded / dizzy and lost memory. I'm going to hold off for awhile. I will keep a notepad for a few weeks.

I just went. I didn't mention anything about it since I didn't think of it. I realize that I probably should, and could lead to something worse such as a tonic clonic seizure. I will be careful. I'll keep an eye on these spells. Trust me, I would love to tell him. I just don't want to up my medicine just yet. My memory is screwed up from it. If he increases the dosage, it'll just get worse. I talked to him about this, and he just said it's just because you're aging? .. anyway. I don't want to change medicines (since it's risky) or up it. I'll just see. I'm going to change my sleeping schedule to be normal. I'll cut back on caffeine to point of only being water. I seem to had muscles twitching / jerking when I was drinking coffee and it reduced.

Either way, I realize that I should. I just don't care. I'm going to keep an eye out for two or three weeks. I'll consider calling him if it persists. I was sitting down at my desk, and I had one of these 'mini blackouts' and felt dizzy for few seconds. I had a bottle in my hand and I felt it hit the desk. I think it's myclonic seizures. that's waht he said at least. I guess if it continues, I'll mention it to him. I really want to avoid upping my medicine though.
 
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Changing You Meds!!!!

notime,
It is totally understandable to not want to alter your meds. The thing that you need to do is keep thinking about the 'Big Picture' and consider that letting these 'small dizzy spells' could actually lead to more serious problems if they are not dealt with ASAP. Nobody wants that to happen! :agree: It is good that you are already thinking about recording what happens so you can relay this information to your doctor!

ACsHuman
 
acshuman said:
notime,
Many times when a person who has E has strange feelings like yours, it is actually being caused by light seizures. When a person feels an 'aura' prior to having a seizure, that aura is actually a small, weak seizure. This could be what is happening with you. This is only a possibility so you need to discuss this with your doctor to find out for sure!

ACsHuman
Click to expand...

They weak but can be sodding horrible.If you Amerian you pay health insurence can you just ask doctor you want tests .Not quite so easy in uk to many take from health service and not give back
 
Hi notime,
Just like you I've had generalized seizures for many yrs. than all of the sudden I started having myoclonic seizures also. My seizures would happen a few minutes after I got up or right after I went to bed at night. My neuro did a sleep study on me and found out I was having seizures in my sleep 1-2 hrs. before I woke up and this could be what's happening with you. If you feel more tired than usual during the day and have the dizzy feeling this could be do to having a seizure in your sleep. Ask your Dr. to do a sleep study on you along with an e.e.g this is how my Dr. found out what was going on. I then started taking vimpat and the myoclonic seizures stopped thank goodness. Wishing you only the best of luck and May God Bless You!

Sue
 
seagull said:
They weak but can be sodding horrible.If you Amerian you pay health insurence can you just ask doctor you want tests .Not quite so easy in uk to many take from health service and not give back
Click to expand...

Yes. My doctor tries to avoid tests because of the cost alone. He probably wouldn't have done an EEG if I did not ask for it. He's a neurologist with extra training in epilepsy (not epileptologist) ... he tries to treat it with drugs and upping the dose, and go off on what I say. Instead of doing tests. I can't afford it anyway. I'll have medicaid soon perhaps another month. That's another reason I don't want to tell him. He does drug testing, instead of just trying to figure out if they are actually myclonic seizures or whatever with an EEG. I want to move to Canada one day.
 
notime said:
Yes. My doctor tries to avoid tests because of the cost alone. He probably wouldn't have done an EEG if I did not ask for it. He's a neurologist with extra training in epilepsy (not epileptologist) ... he tries to treat it with drugs and upping the dose, and go off on what I say. Instead of doing tests. I can't afford it anyway. I'll have medicaid soon perhaps another month. That's another reason I don't want to tell him. He does drug testing, instead of just trying to figure out if they are actually myclonic seizures or whatever with an EEG. I want to move to Canada one day.
Click to expand...

American health system mystery to me apart seems cruel and only get decent treatment or treatment period if got money.
The tools are there I don't know why doc won't use them.They feel don't need justify diagnosis.Doc would ask other doctors if they had ideas using Mir scan same principle
 
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