wow very hopeful.. vitamin B12

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Tracy-Lynn said:
That is so true... ...its just that if they cant put a name on it then its nothing..
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We have to keep in perspective who "they" are.
Just because they don't know, doesn't mean it doesn't exist. We give "them" far too much power. Their hands are also tied. I am sure there are many that would love to stay by our sides, and continue to find out the answers. Unfortunately they are running a business, and the nature of this disorder does not allow them to do this.

but its not nothing... its definately something.. otherwise i wouldnt be there.. for nothing..
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We all understand why you are here. We are here for the same reasons. I just have found, (after a good portion of my last three years have been devoted to researching my daughter's disorder), that I can find much more information by being proactive in her care. I have been disillusioned by conventional medicine in this particular situation.

Trust yourself and your instincts, and stay strong. Never let anyone convince you that it is "nothing".
 
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