Your med "kind of" stops the seizure?

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JRuner

JRuner

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Does your med/meds kind of stop the seizure but not completely, you can still feel it lurking? I get this sensation kind of floaty in the head then a burning tingling down my neck and back I brace for the impact of a convulsion but nothing happens or I just have a really slight upper body jerk. Afterwords my hands kind of feel tingly but that goes away about five minutes later.

Any similar experiences?
Thanks,

John
 
I get a tingling feeling on the side of my head.
It's like when your hand goes to sleep if you lie on it. it's like that.

Potter Freak
 
That sounds like a simple partial to me. and sometimes those can generalize into tonic clonics.
 
I got the "tingling" on the side of my head too, along with it going down my arm. This happened around Christmas time while I was driving but nothing happened. Then 2 months ago BAM (at work) the tingling on the side of the head and a full blown tonic clonic. Needless to say it gave everyone at work something to get excited about but they handled it really good. I remember the tingling, trying to talk and then waking up in the hospital. Now that gets me Keppra, 2500 mg/day along with the Carbamezapine I was taking (400 mg/day). This is just SO much fun:roflmao:
 
Thanks everyone, Before the Klonopin for depression I would shake hard upper body five to fifteen seconds apart for a minute or I would shake more and more rapidly for full body for a half minute to a minute. Usually aware while it was happening but sometimes missing a minute or two and thinking it was just a second (per my wife watching) of myoclconic stuff! I always know day people sort of the time but mix words or get migraines beor and or after. Now with the med the headaches are really mild.
 
Phylis I have only been on the Klonopin for anxiety/depression for five and half days so I doubt I have much built up in my system, I take two pills one in the morning one in the evening but am allowed to take two a.m. and two p.m if needed if I keep having the "mini" seizures I'll call them I will take the extra two doses and see what that does for me? They make me plenty sleepy though! Really miss caffeine.
 
Well 2 Lamical 400MG and 1 Klonopin .05MG in the AM + 2 Klonopin 1.0MG works wonderfully for me. Give the Klonopin a chance. And perhaps you should take less in the AM and MORE in the PM. I had to experiment a bit with the timing of both the Lamictal and the Klonopin to get it right..
 
Hey, John.

I was still having auras at 900mg of Trileptal. Auras for me are this physical feeling in my head that is kind of like a bad chord sounds on a piano, plus this emotional feeling that something is very, very wrong. I didn't give them the chance to progress to more seizures. The dose of Trileptal was increased to 1200mg.

My doctor has called my auras simple partials, so they are seizures themselves, even if something else bigger doesn't happen. I'm guessing yours are, too.

Call your doctor. Maybe your meds need adjusting?
 
Endless, Thanks!

The problem I have is the old neurologist clashed with me and upon the Epilepsy foundation's and advice here I found a new doc, but I don't see him until June 23! I will try upping the Klonopin at bed time it makes me to groggy during the day. For right now a concerned Psychiatrist is my only doc and he stated he is trying to treat the anxiety/depression and hoping seizure control is a happy side effect as he had to state he is not a neurologist.

John
 
Well, I 'm so glad your psychiatrist is a sympathetic one, and is trying to treat your epilepsy while he's treating your anxiety. I also hope you find a good epi soon.

I know you've probably seen the epilepsy foundation's find a doctor list. http://www.epilepsyfoundation.org/drsearch.cfm

Phyllis has also posted a bunch of lists. Can't find the post right now.
 
My new Doc Robert T. Wechsler, M.D., Ph.D., is a fellowship-trained epileptologist who is serving as Medical Director of the Idaho Comprehensive Epilepsy Center on the St. Luke's Regional Medical Center campus in Boise, Idaho. He is on the list and the on Doc listed for Idaho! I found him through The Idaho Epilepsy Foundation.
 
Yahooooooooooooooo! He sounds GREAT! :clap:

Let us know how it goes, okay?
 
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